OCREVUS-3RD

[traveljaff]

TOOK MY 3RD DOSE ON 12/5. PAIN IN BLADDER, PEEING ALOT, WEAK, DIZZY, TIGHTNESS IN STOMACH, SPASMS IN LEGS ARMS AND BACK. STARTED ANTIBIOTIC FOR BLADDER ISSUES. FEEL LOUSY. SAME THING HAPPENED WITH 1&2 DOSE. THIS WAS A FULL DOSE ALL AT ONCE. 5 DAYS LATER STILL FEEL BAD. HOPING BETTER THIS WEEK. ANYONE ELSE HAVE THESE SYMPTOMS AFTER??

[jimeka]

traveljaff thank you forbeing so honest about Ocrevus. Do you only have to have the one dose the third time? I hope that your symptoms improve for you. Once the initial shock of having the dose, do things settle down, and is there any improvement at all, for eg walking, balance, fatigue? Blessings Jimeka 🦋 🎄

[Yooper]

Traveljaff: Sure praying you start feeling better. Keep us updated. I have my first full dose coming in January. We pray the results will be worth it. Know you are not alone in this. God's Peace 🙏

[bavery207]

Thank you for your update. I am scheduled for my first full dose Feb.7. I did not have your type of reaction, just fatigue for a few days, especially after the first infusion. I also have not noticed any improvements since the infusions traveljaff .

[bxrmom]

traveljaff I'm sorry you and not feeling so well with Ocrevus. Hope you get some relief soon. Please keep us updated.

Jessie

[Hidden]

Yes but I'm not on ocrevas. I was diagnosed with kidney infection, and possibly intestinal ulcers but it'll be months before gi. Maybe bladder kidney thing feels that way, originally I thought gall bladder attack and vomitting. It's hard to figure out what's going on when your hurting everwhere

[Allen5280]

traveljaff I am at the end of my 3rd week after my first full dose. I was also experiencing more frequent urination for a couple weeks. I am still weak but not quite as much in the first couple weeks after. Also had some increased spaticity however that is calming down as well. Still can't sleep as I would like to... ex. I prefer a 10pm bed time over a 330am bed time. Or around there. I fall asleep in the evening and then can't sleep at night. I had similar experience with my first infusions. It got better before and I was in physical and Aquatic therapy prior to my third infusion. Something I hadn't been able to do in years so hopefully in the next couple weeks I can get back into it because I am still stronger than I have been in 6 or 7 years. Even throughout all of this it's still easier in me than any other of the 3 dmt's I previously tried and so far it's doing it's job. I know the aide effects can be miserable but for me they are a acceptable trade off for I'm looking forward to getting out of this funk soon so I can get back to my efforts of gaining ground physically over not being able to do anything. I am beginning to get where I can do more basic stuff around the house cooking, cleaning, laundry dishes etc. So it's a slow process for me but I will have (hopefully) a 5 month good peroid. Time will tell but i cant wait to get back into therapy. I have been left in such a weekend condition from MS and I want my strenght/ muscle tone back. I believe it's the only answer to me ever having the hope of having a life (girlfriend, date, or even just go fishing) again. So i fighting and even the past to weeks I have been using my resistance bands again to push through this period. I know it's uggghhh. Feel like I am fighting off the flu or something but it will get better if it's like the previous times.

[Linda3579]

I had my 3rd dose of Ocrevus in October. I felt really crumby for about 10 days afterwards. I was very weak and had more bladder trouble but no infection. After the first couple of weeks I started feeling a bit stronger. The past 2 weeks I have been so much better. I was able to go back to my adaptive exercise class. I have been able to move my leg better and sometimes walk without my cane. I know it's hard to be patient when you feel rotten, but I think you will be over this sick part soon. I will think good thoughts for you, and hope that you will feel better soon. Best wishes, Linda