Ocrevus question

[MichaelFleeger]

I was wondering if any of you that are receiving Ocrevus got very puffy eyelids as well as black eyes?

[Allen5280]

No I have not experienced anything like that myself. I am in my second month on Ocrevus and I had some vertigo issues for a few weeks and then a period of about 2 weeks of being completly whiped out. With this being such a new therapy I am on the phone with my doctors office any time something seems amiss.

[MichaelFleeger]

I also had leg weakness, extreme brain fog, and fatigue. I was wondering if the black eyes was a normal side affect, but I guess it was just me.

[greaterexp in reply to MichaelFleeger]

I hope your doctor is aware of this. Please let us know how you are doing.

[dianekjs]

MichaelFleeger , I haven't had any eye symptoms, or anything like you describe. I finished the first two half-doses about 3 1/2 weeks ago. Like Allen5280 , I was wiped out for a good week after each infusion, and my legs bothered me even more than usual. However, things started improving significantly after that, and the past three days have been the best I've had in a long time. Since I have so many ups and downs with my MS, I'm trying hard not to get my hopes up too much. My neurologist and rheumatologist both told me that the effects of the drug will be realized over months, not weeks. Still ..... I'm cautiously optimistic. How long have you been on Ocrevus, and how are you feeling in general?

[MichaelFleeger]

I had my second half on 7/19. I have more leg weakness than I did, doc said give it time. My eyes are normal now, guess it was my personal reaction,who knows not the doctor.

[MissMewithMS1]

Yes, and my brain periodically feels like it's on fire.