Ocrevus Question

[Jesmcd2]

For those who have been on it for a bit, do you find that you run out of energy by the time it's time for your next infusion?

Reason I ask, my brother is visiting kinda close to my next infusion. I'm wondering on energy level.

Thanks y'all!

🤗💕🦈

[carolek572 CommunityAmbassador]

I was just replying to a post called 'Let's Do An Ocrevus Poll' about that exact thing. Look for it. Some have experienced their Ocrevus waning after 4.5 months. I have not had that experience. But that is just me.

[Jesmcd2 CommunityAmbassador in reply to carolek572]

Which means I'm gonna be a disaster 😂 he can stay at the parents!🤤🤣😂

[carolek572 CommunityAmbassador in reply to Jesmcd2]

Depends on whether you really love your brother and how long he plans to visit...

[Jesmcd2 CommunityAmbassador in reply to carolek572]

Umm, well, this one? I'm pretty sure I like this one! He lives in Alaska! And he's only staying down here a few days. 🤣 Most of that time will be with the parents.😀 Better him than me.☺️😂

[carolek572 CommunityAmbassador in reply to Jesmcd2]

My only brother lives in New Zealand and when he visits, I like to spend as much time as I can with him, but it never seems to be enough. He understands about my 'ms'.

[Jesmcd2 CommunityAmbassador in reply to carolek572]

Long story. 😔 😂🤗💕🦈

[erash]

Jes, I think its very individual how you may respond + MS is so unpredictable

[Jesmcd2 CommunityAmbassador in reply to erash]

How are you?? erash ?? 🤗💕🦈

[erash in reply to Jesmcd2]

Doing alright thanks!

[Jesmcd2 CommunityAmbassador in reply to erash]

🤔😒🤗💕

[rjoneslaw]

thanks for asking this question I'm new to the O family. I had my 1st hald june 24 and 2nd half july9 and I just did my blood test for b cell last monday and waiting on the results

[Jesmcd2 CommunityAmbassador in reply to rjoneslaw]

I had so much blood work done! The techs are beginning to know be by name.😔

[erash in reply to Jesmcd2]

Hah! That’s how I feel at the pharmacy. They know my name and address by heart. 😜

[PWilli in reply to Jesmcd2]

🎵🎶 I wanna go where everybody knows my name 🎶🎵 "Cheers, filmed before a live audience"

[rjoneslaw in reply to PWilli]

mine wish me happy bday every yr

[pamgarner]

oh yes!After 5 months I really feel it.I didn't pay much attention the first time it happened,but I sure did the 2nd.I did tell ocrevus about my experience and I will talk to my dr coming up.Now I could be wrong(i usually am) but I can't see the insurance companys letting you have it more ofter like every 5 months

[Iona60]

I had much more fatigue than usual before this last infusion, and it took longer to return to baseline. Got it mid July, and I'm still wondering if I got Ocrevus or a placebo. (ha!)

[IFwczs]

It is absolutely true. 4.5 months on the dot it stops working for me. I have already asked my neuro to put me on Ocrevus every 5 months, but of course he needs to see my blood work first in November.