Ocrevus

[Jj12010]

So month 1 down with Ocrevus I can walk and stand for a bit. Hope it gets better. Not so tired as I was.

[greaterexp]

How encouraging! I’m tickled pink for you! Please keep us posted!

[Iona60]

Great news.

[erash in reply to Iona60]

How r u doing with O?

[jimeka]

I find it quite interesting how Ocrevus seems to affect everyone differently. I hope that you continue to improve, blessings Jimeka 🦋

[erash]

Keep us posted and hope all goes well.

[kdali]

That’s great! 🎉

[bxrmom]

That is so great to hear Jj12010 I hope it keeps getting better and better for you.

Jessie

[lexsarset]

So awesome to hear! I am trying to decide on a treatment as I type. If you do not mind me asking; what type of MS do you have? Again, awesome news!

Blessings!

[Jj12010 in reply to lexsarset]

Sendary progressive

[lexsarset]

Thank you. I have been diagnosed with PPMS. I walk with a walker most of the time and can walk with a cane bc I am getting stronger and standing for longer periods of time. I was on Tecifidera when I got diagnosed in 2014. In March 2016, I started Tysabri. I was afraid of PML. I had my last Tysabri infusion in Oct. 2017. I did not have any DMT in 2017. However, I did a Nutritional Ketogenic diet, stem cell therapy, and Mannatech Supplements. I felt awesome. I did this in addition to PT, and acupuncture. I have seen 3 MS specialists and 2 neurologists and still do not feel neither of them are the rt one for me. I do not want to be a guinea pig and I am tired being comparing to other patients. We are all different. I had a MRI in Feb and it was negative for active lesions on brain and spinal cord. I started Copaxone in March and had a MRI on the 10th of this month and it came back positive for an active lesion on my brain. My primary physician wants me 2 begin Tysabri again. He thinks it is a stronger medicine than Ocrevus. Do any of you have any experience with both of these drugs? Tysabri did not affect me in a negative way; I was just afraid of PML. However, i always tested negative for JCV. Again, thanks for responding.

Continued blessings!

[Jj12010]

I ve been on Avonex, Copaxene. Gylenia, Tysabri and now Ocrevus. I don’t know, the best I felt was when I was given IV steroids. This is second. I suppose different things for different people. I was a little nervous with all of them but my quality of life has deteriorated so much I pretty much figured if one works it’s way better even if for a short time

[Jj12010]

Okay neurologist yesterday he says wAlking approved 30%. Yippie Skippy

[Johngm]

Great to hear that. I just had my second one and if I didn't know better I'd say I was in a study and got the placebo. I'm no better not no worse. I guess, maybe it is too early to tell. My sext one is in April, Sure hope and pry it works. Happy holidays to all.