Tinnitus sucks!

[ynggal]

The ringing in my ears is driving me crazy! Over the last several months it's gotten increasingly worse. My hearing will be so-so and all of a sudden it gets very muffled and the high pitched ringing starts. It used to happen maybe once a week and now it's happening several times a day. It's positively maddening! 😣😖😠😡😤

[Morllyn]

So sorry, I do not know what to say that can help but, I hear you. Others on here may be able to help though ynggal . 😢

[erash]

ynggal

I've gotten that too @ half a dozen times in my right ear. The last episode lasted the longest x1wk: muffled, tinnitus, and hyperacusis (sound are amplified and hurt my ears and not sure how that can occur with hearing muffled but it does).

My husband wears hearing aids (he's a former rock n roller) and despite multiple ENTs saying my hearing is fine, his hearing aid helps me when I have one of these episodes.

[Jesmcd2 CommunityAmbassador]

I completely understand. What I don't understand is why when I'm doing the dishes, and the water is running. I hear music 🎶 in my right ear.😢 Drives me insane.😢

If you come up with a way to stop it let me know ynggal 😊💕

J 🌠

[ynggal in reply to Jesmcd2]

My ears have been a real issue lately. Even harder to hear on the phone or every day face-to-face conversations. My ears are still ringing this morning. Ugh.

[MarkUpnorth]

I've had a slight ringing in my ears ever since I was a kid. Having had MS for 25+ years now, it didn't really get worse till about a year 20. It is now very load! I have for the most part mentally tuned it out. If I stop to focus on it, yes, it is loader that the planes flying overhead (I live within 10 miles of a major airport). You can get used to it. I've stopped worrying anymore about all the small stuff. Now that urge to pee without warning,... that comes on so STRONG, giving me about 30 seconds to get to a bathroom. That GPS bladder! No, really, stay positive. You can get thru this, if this one is here to stay. It's really nothing, JUAT WAIT!!! No really, look at what's good, not bad, and you can get through lots. Ignoring them, jes it may be tough, but you can almost forget they are there! REALLY

[Midgey_Midge06 in reply to MarkUpnorth]

Totally

[goatgal]

ynggal Thank you for posting! You have made me feel less crazy. I just had my hearing checked last week because every time I have complained to one of many doctors about this, their reaction has been sort of "huh" Turns out there is nothing wrong with my hearing.

But: I've redeveloped a startle reflex when I don't anticipate a loud noise (the phone rings when I am focused on something, car horn in traffic, wind blowing the door shut etc.); some days it is louder than others; some days tinnitus cuts out in one ear or the other. It is louder in my left ear than the right, the same side of my face affected by drool that gathers in the corner of my mouth, and it is my left eye that first experienced optic neuritis. My neurologists (even the most recent whom I like and respect) say this is not MS related. To which I always want to respond BS. Just because it can't be seen on an MRI, and they can't hear it, doesn't mean it doesn't exist.

Mine started about 17 years ago: initially intermittent, sometimes in one ear then the other, sometimes higher pitched than others, once oddly a memorable quacking sound as if a duck was stuck in my head looking for a way out, and once as erash describes the whole world muted and muffled for about 15 minutes. If MS has the ability to attack the nerves that affect my vision, my swallowing, my gait, my muscles, my bladder control, my cognition (this is a long list, but you get the idea so I'll stop at this point), how is it that my hearing can be immune to damage? Okay, rant over, now I feel better. I do understand your suffering. Really, I do!

[Midgey_Midge06 in reply to goatgal]

My neurologist (who has to be at least 100 yrs old and has seen it all) says many of his MS patients have tinnitus and there is nothing that can be done about it. It started for me about 3 years ago and has never left. I use a white noise machine at night to sleep - it cancels out the ringing sound - and a bark collar on my dogs 😉

[ynggal in reply to goatgal]

Wow! We sound like twins in terms of our symptoms. Have you experienced issues with your vocal cords not working? Back in February I went for more than 2 weeks and couldn't speak above a whisper. It gradually got better, but now it's beginning to happen again.

[MarkUpnorth]

Yes, the white noise machine helps. Forgot about that, because this time of year I use a window a/c in the bedroom and that works too.