Hi all,
Do any of you experience ringing in your ears that has been attributed to your MS? Mine is ongoing and loud. My neurologist said that I should go to an audiologist and that it wasn't related to my MS, but I am not sure that MS is really his expertise.
I welcome any feedback.
Thank you
Get an MS Neuro! Like now! 🤣 Call Call MSAA if you need to Toll-Free Helpline (800) 532-7667And its called tinnitus. Its horrible... l had it in 1 ear, now both😢
Seriously, get an MS Neuro! You want someone who knows what they are doing! And start keeping a journal of your symtoms, they can change from day to day.... 🙂
Did you have your infusion yesterday?🤗💕🌠
I had a busing happening to me yrs ago in the begging of my MS life. problems with ears & hearing ARE part of MS! please find an MS specialist I go twice a yr to see one there is a big difference between a dr who is a specialist in MS an a Neurologist who treats all sorts of things.
It's funny because the audiologist will say it's common for MS 🙃 You should go and get a baseline done.
Yes, I’ve had/have it. My neuro wasn’t convinced it was from MS, but he did say MS can cause it and affect hearing 🤷♀️
I am convinced my constant ear noise (tinnitus) is caused by MS. It began with a trigeminal nerve flare that affected the left side of my face. The flare subsided, the tinnitus did not. I had my hearing tested by an audiologist, I have no hearing loss and have learned to live with it. I don't care what neuros think, I know it's related to my MS. I have never used loud machines, attended loud concerts, or listened to loud music.
Yes Lord, I have been to doctor after doctor???? I'm convinced my lesion must be near some area or maybe inflammation. Doctor did put me on low dose of steroids. Tested my hearing, praise God wasn't affected too much; just annoying!!! I sleep listening to Jazz, the only way I'll get to sleep. If it's get real bad, see an Ear Nose and Throat Specialist. Be praying for you. NeeC. Peace and Blessings
My audiologist & ENT Dr both said my tinnitus is probably from MS which is what my Neuro had suggested. There's not a lot they can do about it. I do have hearing aids now & it has helped to calm the noise down. Sometimes shaking my head sideways& then up & down real fast will calm the really loud ringing. I guess it rearranges the marbles in my head... or at least what's left 😂 Hope you can find a good Neuro that understands MS.
An ms neurologist is definitely a necessity please don't wait
I’ve had it for two years. Ugh. I try to get involved in what I’m doing, play soft music, and avoid silence when possible.
I think mine came on after I took a prescription strength Aleve for hip pain. I saw an audiologist about six months after it started. Checked my hearing, he said it’s normal and there’s nothing he can do for tinnitus. I’ll probably have it over the long haul. ☹️
A friend sent me this YouTube video
I did go to an audiologist, but it wasn’t due to ringing in my ears but I couldn’t hear. It felt like I had cotton in my ear and it sucked everything was muffled and then it stopped after several months. For me this isn’t the only thing that no one can explain and just stops just as fast as it came on. Ms Nero always says but MS all others MS.
I had hearing tested but by the time I got tested I was fine and I did it to get a baseline - I have better than average hearing for my age but no explanation in the cotton ball feeling/reduction in hearing 🤦🏻♀️or why it happened 🤷🏻♀️
Maybe talk to your Nuero first. My ear ring when I am very stressed or really mad! I just take a couple of Tylenol and lay down for a while. Low lights, just try think of pleasant things.
I happen to follow Dr. Kats and his Hom3ostasis.com vitamin (Niacin Quick Release) supplement regimen. I've seen some improvement in both ears (maybe a bit more in my right ear). I'm up to 5G of Niacin per day👍
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