The waiting game

[Shona68]

I'd like to say hi to all my new found friends on here" I had my first MRI scan 2 weeks ago just waiting on neurologist getting back to me and it's taking forever,had some blood work done and have been told my vit d is extremely low so started vid d supplement,I was told at the scan I'd here within 7 days , what I'd like to mention is since my scan I've felt I'll not sure if I'm worrying above scan or it' just things playing up ,thanks for listening xx

[Jesmcd2 CommunityAmbassador]

Hi Shona68 I truly hope things turn out well for you and you don't have this dreaded disease.😊 But you are always welcome here you know that!!!💕

Hang in there! And let us know!

Jes 🌠

[Shona68 in reply to Jesmcd2]

Thank you ' when my daughters were growing up I'd always say be patient in general no news is bad news' now I'm the total opposite ' eating my own words is the expression I believe lol xx

[melack01]

Shona68 Waiting s the worst. Take one appointment at a time, don't worry too much and be patient. I had multiple MRI's, a lot of blood work, and a lumbar puncture before diagnosis. Also appointments with optometry and neuropsychology and I might be leaving some stuff out. Yes, the worrying can make you feel ill. It does me. But keep an eye on it, in case you really are ill. Wishing you the best, hope everything is resolved soon.

[Shona68 in reply to melack01]

Thanks 'hopefully not wait too long xx

[Raingrrl]

Hi @Shona68! Waiting really is stressful. I'm hoping you hear something soon and its good news!

Its good that you know that your Vitamin D levels are low so you can start treating it. Low levels of serum vitamin D have now been implicated in a lot of illnesses including M.S. My level was super low when I was first tested. I've been taking Vitamin D3 supplements for years and just recently my neuro was finally satisfied with the results.

[Shona68 in reply to Raingrrl]

Thanks for the reply, I've worked full time night shift for years so hopefully that might be the case for low vit d xx

[greaterexp]

Shona68 , welcome! I hope it turns out that you don't need us. But I do pray you get answers soon. Not knowing why we have these crazy symptoms is stressful, and getting answers can be empowering.

Hang in there and keep us posted.

[Shona68 in reply to greaterexp]

Thanks yeah I'd just like to no whare I stand with all this been going on a few years now, thanks for the welcome I've been on this forum for a few months now and I'm afraid I can relate witch is worrying ' but the good thing is I can c use guys r all just getting on with it ,witch is an inspiration xx

[gatorman15]

Hi Shona68. It is a lot to process but this group has helped me just having folks that understand and may have information to share.

[Shona68 in reply to gatorman15]

Ye learned lot from here this last few months,felt like a weirdo we all that's going on ,now it appears to be the norm thanks xx

[WAshingtongirl]

I can't add much more to what the others here have said. I just know how I felt waiting and wondering-for years. The unknown, to me, is far worse than any diagnosis. Praying for you as you wait...💕

[Shona68 in reply to WAshingtongirl]

Defo have to agree with you its the unknown I find difficult thanks for ur reply xx