OK so first I had a miserable and exhausting 2 and a 1/2 hour appointment at Mi Rehab Services this afternoon for an assessment to see if I'm eligible for services. I'm mentally and physically incapacitated from all that. Lots of stupid brain excercises like matching and putting picture puzzles together, word association, "feelings" surveys, math problems (uughh) spelling, logical sentence order (which word is missing) just to name a few. I couldn't even finish most of them brain block was in "megamode" the whole time and I was a nervous wreck--had to leave the room and go puke! (sorry tmi but true)
Now, fast forward to: returning home to a pile of mail from SSI and Unemployment office. More forms to fill out and send back, but one for SSI is a "Adult Third-Party Function Report." WHAAT??? Now I need to find someone who "knows about my illness and lifestyle" and have them fill this s#$t out?? Welp, my boyfriend won't do it since he isn't supportive and doesn't want to get involved, and I have nobody else that can do it. I don't have any friends, family, or anyone at all, near or far, that knows about my illness and how it affects my ability to work and do other things. And even if they did, they don't live here with me so how would they know how often I cook, shower, when I get up and go to bed, have sleep issues, clean house or anything else for that matter? I don't know what to do with this, I have no one to fill out this d@#n form. Does anyone have any suggestions, as they would be surely appreciated! I don't want to call the SSI office yet and tell them I can't get that form done and sent in on time (by the 16th) because I don't want to get denied for something as stupid as this. HELLLPP!!! ;-/ Thank you in advance!
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Bamfan1442
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Oh Bamfan1442 I'm so sorry you are having to go through this. I haven't applied for SSI, but I have applied for other things. It is so mentally exhausting. Do you plan on filing for SSDI? My suggestion would be to find an attorney that specializes in SS disability. Maybe you can get help from MSAA or the MS society. There are also some non-profit places that provide help. erash didn't you mention someplace that helps people complete forms. For some reason the Able Trust comes to mind, but I'm not sure if that was the place or not.
Thank you Iona60 ! Yes, I applied for SSDI and SSI at the same time but had a phone appointment with local rep from SSI. All these forms are making me crazy, wanna lay on the floor and curl up in a fetal position and just stay there!! lol I haven't contacted an attorney yet because It's still in process. They are reviewing all the other forms I sent in and no decision has been made yet. I just got this other form in the mail today and don't have anyone who can vouch for me and my symptoms or abilities on a daily basis. But, from what I gather from this process, it looks like I have to somehow conjer up some "imaginary friend" who can prove that I have a medical condition that keeps me from working. But how?? seriously?? I haven't seen a doctor yet either, have my first appt. next week but that is only for a new patient visit so I doubt very much she will order tests on that day. Everything is in limbo for me right now
Debbie_2 Thank you for your reply! Sorry mine is so late, had to watch America's Got Talent last night then went to bed. I just woke up so starting my "coffee therapy" and trying to figure out which tasks to do first! I will make sure I look them up and give them a call at some point today, and thanks for that suggestion
Bamfan1442 i think our local (central fla) NMSS office helps with connecting people with social services. Maybe you have that available to you? An OT might be able to do that assessment. Perhaps your neuro can make that referral?
Good morning erash and thank you for your reply! I haven't seen the doctor yet not til next week for first appt so waiting on referrals to a OT and neuro. But in the meantime, I will look up NMSS office nearby and call them to see if they can help. I have a caseworker at social services but she is hard to get in touch with. I will try calling her and leave a voicemail and hopefully she will call back!
Thank you Jesmcd2 ! Just waking up and getting my coffee therapy so when my brain is clearer, I will include them on my list of things to do today! It's growing at a rapid pace now, but I am thankful and appreciate everyone's advice!
Oh, and P.S. more than likely the boyfriend is going to dump me unless I can start bringing in some $$ from somewhere. Otherwise, I have no place else to go, don't know anyone around here and I just got a new dr. so I can't really move away from this area. I would have to go to a shelter if I can figure out a way to get there (no car), and leave all my stuff here since I can't afford a storage unit.
Hmmm Bamfan1442 I'm sorry😕 sounds like both of you need a heart to heart. We do forget how our MS affects others, especially the ones around us. The ones closet.
Being in limbo, can be extremely difficult as you by want answers. Or ANYTHING, just something that you can put a name on to fight. We have been there, one way or another. Just talk. Then talk some more. He can't understand, what we can hardly understand ourselves.. Patience😉
Thank you Jesmcd2 for your kind words and advice! I've tried to talk to him but it's impossible to convince him that there is possibly something seriously wrong with me. Also that it's the reason for getting fired from my recent jobs, it wasn't done intentionally or willingly on my part. I honestly think he just doesn't want to accept that possibility so he refuses to be supportive, especially since I don't even know for sure what's going on. We are butting heads with this and it's becoming more and more diffucult having to deal with this alone, especially knowing that I can't stay here much longer! Don't know exactly when or what I'm going to do. I've looked into shelters but the closest one is over 20 miles away in a different county so I won't have any way to get there or to my doctor's office and no place to store my belongings. And, I would have to arrange it on a day when his kids aren't here and while he is at work. He only works 3-4 days a week and they will be here on all his days off this summer.
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I will make sure I look them up and give them a call at some point today, and thanks for that suggestion 
9 Jul 2023 I think I got everyone if not sorry
Rudolph & Hermey Got NOTHING on ME!!!
Got back my newest MRI results
