Turn on, tune in, drop out. . . - My MSAA Community

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Turn on, tune in, drop out. . .

GasLight profile image
7 Replies

Sooooo, my fellow MS-keteers, what say you about these particular developments????

youtube.com/watch?v=f1e-mP1...

Please feel free to comment, as you see fit. . .

--Christopher

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GasLight profile image
GasLight
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7 Replies
jimeka profile image
jimeka

Thank you Christopher. I found it very interesting and if made available will change lives for those who are trapped inside their own bodies. Also the families involved will certainly be blessed being able to communicate with their loved ones. I shall wait to hear more. Blessings Jimeka

GasLight profile image
GasLight in reply tojimeka

My thoughts exactly, Jimeka-- the notion of becoming "trapped and incommunicado" would soon appear to become a much lesser threat. What a blessing that would be for patients and their loved ones alike!

Morllyn profile image
Morllyn

I wonder, it says 7 out of 10 patients reported they were happy. Really!

Thank you for bringing this to the group, GasLight .

GasLight profile image
GasLight in reply toMorllyn

Good morning, Morllyn . The interesting thing to me is that 7/10 seems to be higher than the reported contentment levels of fully communicative but highly disabled patients (at least from what I've seen previously).

Perhaps being able to "drop out" of communication (but still interact passively) lessens one's perceived stress/bother. I had always assumed just the opposite, though-- that it would be tormenting, for example, to have an itch and not be able to ask someone to scratch it for you. . .

Anyway, I found it very interesting, and I'm very glad that you did, too.

-- Christopher

Morllyn profile image
Morllyn in reply toGasLight

I did find it very interesting, and like you, I would think being locked in, with no way to communicate, would be torture.

Karen-x profile image
Karen-x

That is fascinating. And as you guys said how awesome it would be for families to be able to interact with patients. I'm not a scientist so how they go from this to be able to apply it to a wide range of neurologic issues boggles my mind. Guess that's why I was a concrete numbers lady, not an abstract thinker. 😏

Sukie427 profile image
Sukie427

If this report is coming out of Miami, I wouldn't trust it at all. LOL. Seriously, the flaws in such research are self-evident...as long as they are open to interpretation, who knows whether this works or not? They certainly can't show the answers to the patients and have them agree or disagree with the results. I kind of doubt the results that show the high percentage of such patients are happy. But if it is possible, can you imagine the possibilities for autistics, stroke patients, people with cerecral palsy, spinal cord injuries, etc? It would be amazing.

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