Ear ringing?: Anybody have ringing in the... - My MSAA Community

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Ear ringing?

CalfeeChick profile image
CalfeeChickCommunityAmbassador
19 Replies

Anybody have ringing in the ears? I was just diagnosed a month ago. Ears starting ringing today and just wondering if it's another symptom.

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CalfeeChick profile image
CalfeeChick
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19 Replies
mayestas profile image
mayestas

Yes unfortunately it is one of many symptoms pick's disease is a royal pain bit you must rise and move on

TrikeMan profile image
TrikeMan

First time I've ever heard mention of it as an MS symptom. Not one I've ever personally experienced with RRMS.

Judi4 profile image
Judi4

CalfeeChick Hi there, my name is Judi. I also experience ringing but sometimes it's this weird buzzing noise, like you might hear when you were little and they gave those hearing test in school. I even ask my kids if they can hear the buzzing sound, but they don't. Kind of makes you feel like you are going crazy. Have you experienced any hearing loss? I was diagnosed years ago with low range hearing loss, so I sometimes struggle hearing in noisy areas or if people talk in soft voices I am unable to understand what they are saying. Again I think this is a symptom not everyone has. Have you mentioned this to your doctor?😊

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply to Judi4

The ringing stopped after about 3 hours. You described it perfectly. I'm trying to keep a journal of symptoms, feelings etc.

kdali profile image
kdali in reply to Judi4

I had the buzzing with Lhermitte's, and it was louder when I leaned my head forward.

LadyEllie profile image
LadyEllie

I have often asked my husband if he can hear it. It gets so loud I can't think some times. My sympathies,

CherieMSCN profile image
CherieMSCN

CalfeeChick , yes. But it comes and goes. Can be there for a few days for me during a relapse or when I get overheated. However my mother , who did not have MS, had it for years . As to whether it is a symptom of MS, if it is still there in a few days it would be wise to let your Neurologist know.

mepilot61 profile image
mepilot61

I, too, have ringing in the ears. I have had it for YEARS, though, so I don't think it's from my MS. It is irritating. I hadn't had any dr diagnose me, but I KNOW what I hear. I wish I could stop it.

purpletustin profile image
purpletustin

Hi CalfeeChick, Sending you good thoughts this morning. I'm 71, long retired and grateful for the joy we have.

I've had the ringing in the ears intermittently. Each new 'symptom' presented it's challenge, but must admit the ringing drove me crazy. My family did say that drive to crazy was a short trip for me. We, as a family tend to be 'disrespectful' of my MS and turn most things into an irreverent joke. So much for us.

I've had 3 incidents of the ringing and each one eventually cleared up. Nothing I tried helped, but it would clear up on it's own. Saw audiologist, neurologist, but it wasn't there any longer. Don't think my comments provide any insight for you, but I came away from the ringing so darn grateful it wasn't there any longer. Hope it doesn't come back, but will deal with it just as we ALL deal with the surprises of MS.

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply to purpletustin

It quit after about 3 hrs. All of this is new to me.. the ringing seems to start when i've over tired myself. Thankful it went away. I'm 68, just diagnosed and grateful that I've got to do so many wonderful things in my life. and plan on allot more once I get some treatments going!

Tinker-Belle profile image
Tinker-Belle

Yes, I have ringing in my ears. It's usually my right ear and lasts for 15 seconds and then goes away...until the next time.

Eileeng profile image
Eileeng

I also have hissing in my ears.....It's usually always there. I know it's called tinitis (spelling?). I have had it for many years. I never connected it to my m/s. I will ask the next time I see my neuro. It's very annoying, however it's something that most of the time I can ignore. An ENT doctor once told me hearing aids would help. I don't know how. I didn't want to try it. Good luck to you. Stay well.

beadowns profile image
beadowns in reply to Eileeng

Hi, Eileeng, & Caffe (?), Tinnitus is probably the cause when it's long-lasting, not sure when it's fleeting. It's often caused by medication, and even aspirin can cause it to happen. Since MS is a disease of the nerves, anything on nerves can be affected. I've been told nothing helps it, but who knows? I've had tinnitus for many years, and I'm 74, was dx'd 32 years ago with PPMS, which is typical when not dx'd till after age 40. I was 42 when I had a hysterectomy, not even five-six days later I began having spasticity in my legs! I thought my Dr. may have nicked a nerve or something. Five years later I had an MRI and found out I had something I'd never heard of. Within two hours I was at the MS Society and learning what to expect. Never happens like predicted, right? I still feel MS is not so bad. Better than lupus, fibromyalgia, rhumatoid arthritis, and any other painful disease. Just sayin'. Hope this helps. BTW, I live in Central CA ~ where are you?

Bea

Iampain profile image
Iampain

My audiologist said hissing noises in the ears were the sound of the nerves dying, typically after being subjected to loud music. I have it now, and I don't listen to loud music. After reading this I have more questions and no new answers. Ido have hearing aids, and don't get the pulsing, hissing noises while they're in...

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply to Iampain

Interesting.. Ringing stopped after about 3 hours

MSMemesandmore profile image
MSMemesandmore

facebook.com/msmemesandmore...

Most people who seek medical help for tinnitus experience it as subjective, constant sound, and most have some degree of hearing loss. Things that cause hearing loss (and tinnitus) include loud noise, medications that damage the nerves in the ear (ototoxic drugs), impacted earwax, middle ear problems (such as infections and vascular tumors), and aging. Tinnitus can also be a symptom of Meniere's disease, a disorder of the balance mechanism in the inner ear.

Tinnitus can arise anywhere along the auditory pathway, from the outer ear through the middle and inner ear to the brain's auditory cortex, where it's thought to be encoded (in a sense, imprinted). One of the most common causes of tinnitus is damage to the hair cells in the cochlea (see "Auditory pathways and tinnitus"). These cells help transform sound waves into nerve signals. If the auditory pathways or circuits in the brain don't receive the signals they're expecting from the cochlea, the brain in effect "turns up the gain" on those pathways in an effort to detect the signal — in much the same way that you turn up the volume on a car radio when you're trying to find a station's signal. The resulting electrical noise takes the form of tinnitus — a sound that is high-pitched if hearing loss is in the high-frequency range and low-pitched if it's in the low-frequency range. This kind of tinnitus resembles phantom limb pain in an amputee — the brain is producing abnormal nerve signals to compensate for missing input.

Most tinnitus is "sensorineural," meaning that it's due to hearing loss at the cochlea or cochlear nerve level. But tinnitus may originate in other places. Our bodies normally produce sounds (called somatic sounds) that we usually don't notice because we are listening to external sounds. Anything that blocks normal hearing can bring somatic sounds to our attention. For example, you may get head noise when earwax blocks the outer ear.

.......(read more in article

Masking. Masking devices, worn like hearing aids, generate low-level white noise (a high-pitched hiss, for example) that can reduce the perception of tinnitus and sometimes also produce residual inhibition — less noticeable tinnitus for a short time after the masker is turned off. A specialized device isn't always necessary for masking; often, playing music or having a radio, fan, or white-noise machine on in the background is enough. Although there's not enough evidence from randomized trials to draw any conclusions about the effectiveness of masking, hearing experts often recommend a trial of simple masking strategies (such as setting a radio at low volume between stations) before they turn to more expensive options.

#ringingears #tinnitus #meducation

healthcentral.com/multiple-...

agapepilgrim profile image
agapepilgrim

Hi CalfeeChick I was just "officially" diagnosed 6/6/16. Never forget that date! I will be 70 next month. It blows my ind (what is left of it) that so many writers on here are over 60, when my first neurologist 6 years ago told me at my age (then 64) the demyelination would not advance that rapidly, it did not need to be treated with medication because I would be in my 80s before I would be diagnosed with actual MS!! Fast forward 6 years, a cardiologist saw the same MRI, sent me to MS specialist, who immediately diagnosed me with MS, and started on meds, took another MRI, and 1 lesions had progressed to 8 lesions in brain, and symptoms had skyrocketed. All my symptoms were contributed to the "beast" Fibromyalgia which I had been diagnosed with 20 years before! The primary doc wanted second opinion, who traced the MS back to age 17 when I had my first bout with temporary left eye blindness (which was diagnosed as stress)! So, now I review ALL my innumerable health symptoms for 50 some years, and every one of them are listed in the MSAA site as symptoms of MS. There was no med for MS 50 years ago, but I think I could have saved myself a lot of medication for other diagnoses that didn't help anything (except pain pills and sleeping pills which I can't get anymore in KY!-moved here 8 yrs ago), So, in my sunset years, the medical field finally came up with a name for all my problems, but still no relief or help or answers!

As for the ringing in the ears......I must have "white noise" at all times or I have ringing in my ears. Now, I run a small fan on my nightstand for the noise and the coolness, and my husband covers his head because the cool air stops up his sinuses. I feel like I'm going crazy if there is complete quietness. I start pulling at my hair, walking around, stopping up my ears - yep, gotta have some noise to stop that ringing! Welcome to us senior citizens who were finally diagnosed, but probably had MS for years, but just kept going anyway like the pink bunny! Yep, that's what we were - pink bunnies! But, this pink bunny finally ran down, the battery is almost dead, and the bunny stays in bed or recliner most of the time!

MsMeli54 profile image
MsMeli54

Hi, I haven't been officially diagnosed with MS yet as I just had my MRI on Thursday. Ringing in my ears is one of many symptoms that I have had since 3/25/17 when this all started. I am also dizzy every day so I am currently not driving and I walk with cane to help catch myself when I lose my balance. Most of the other symptoms have subsided now.

kdali profile image
kdali

Yes, for years. It doesn't stay for too long and doesn't bother me much, so I don't mention it. Most people will say it's not MS related (because it's uncommon), but they use to say MS couldn't cause pain too 😉

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