MS resources!

[KDenes]

I recently had an consultation at the new Stanford neuroscience Center and have never had such a compassionate devoted educated and thorough experience and all the 25 years I've had a MS! They are referring me out to numerous different areas to address symptoms and problems with my MS. I hope all of you are as fortunate to have good care and support as this disease is very challenging and it's easy to get discouraged!

[erash]

Wow! Would love to know more about the referrals--who, what type, and their interventions. So glad for you tho!

[Joalyn]

I am more and more impressed with medical colleges. My husband sees all of his doctors through UTMC our local university's medical college. They are the BEST doctors and staff I have ever known.

[Educator22 in reply to Joalyn]

Since 1999, I have been treated at USC's Neurology Center, MS Division. What fabulous care I have received. If any MS patient has access to a university medical center, please go there for a consultation and treatment. You will recieve the best treatment & access to the newest meds and products their research has shown to work for MS patients.

[Jesmcd2 CommunityAmbassador]

I also go to URMC and they have an MS center. I was truly lucky that l got in so quickly. Saw an arthritis dr for my neck on a Friday and was sent to see my neorolgost on the following Monday. After another mri which is done close by. I love that they have a center just for MS and they all work together

[CalfeeChick CommunityAmbassador]

Glad for you. I was just diagnosed August 3. Am going to UCSF MS Clinic September 21. Hope to get treatments started and get some relief.

[Ebrod in reply to CalfeeChick]

Hi Calfee, I go to the ucsf MS Ctr as well. It is nice to have a health team fully entrenched in the battle with me. Always a two-way conversation; heard & respected!

[CalfeeChick CommunityAmbassador in reply to Ebrod]

I've only had 2 appts there and each time was immediately put at ease there. I will be there next Monday to get my definitive DX. Dr. G was disappointed in clarity of more locally done MRI. They've done comprehensive MRI, spinal tap, nerve conduction, and blood work. Get all those results on Monday, then start some treatments..

[Ebrod in reply to CalfeeChick]

Dr Greenfield is my doc. Very thorough but only in clinic 1 day a week! Hang in there, you are in a good MS environment there. Make friends with dr nurses/coord as they are the planner/detailers! Best to you

[CalfeeChick CommunityAmbassador in reply to Ebrod]

Thank you. I lucked into Dr. Goodin. I think he wanted to follow me because I was 68 @ diagnosis. He's only there every other month😊. The other month he's at Palo Alto VA. Husband receives incredible eye care at that VA. Maybe someday we'll meet at doctor's office!

[Sukie427]

Hi, KDenes. I am really glad you found such a great healthcare team. I think that is half the battle to find MS specialists that can understand how we feel even if we can't express it perfectly because some of the symptoms of this disease are so subtle......

[KDenes]

Two of the people that I was referred to was an urology specializing in neurological deficits and a physical therapist that specializes in neurological problems as well! I think it was called physiatrist? Advised about taking high does biotin and also a compound pharmacy that make something similar to Ampyra.

[Ebrod]

Same here, i was at the Stanford Neuro Ctr. as well. I feel so lucky to have it nearby. There is a multitude of options to look into there (and a wealth of info and classes to try out (some free). Makes this oft perilious journey called MS a little more do-able!! 💕

[CalfeeChick CommunityAmbassador in reply to Ebrod]

I have also heard good things about Stanford's new MS center. We are fortunate to have some great resources nearby. UCSF is a 2hr early morning trip for us but well worth it.