Urogyno surgery on MS pati: I am in need... - My MSAA Community

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Urogyno surgery on MS pati

dar58 profile image
8 Replies

I am in need of surgery for rectocele, cystocele, pelvic floor prolapse and all female organs as they are all where they aren't supposed be, I will have a hysterectomy. I have had a catheter for over 3 painful weeks due to a combination of the above problems and the MS. The drs all said that the rectocele and cydtocele formed a canal between them thus, has caused now 8 UTI's since July 10 wheni was fighting for my life In ICU due to septic shock. Has anyone here had this surgery and what was your outcome? I am very worried because I have progressively getting worse with the MS , I also have lupus and Antiphospholipid syndrome, a blood clotting disorder which I am on Coumadin.. Thanks all.

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jimeka profile image
jimeka

I had a full hysterectomy, they took my ovaries, cervix, everything. I had a growth the size of my fist, fortunately I had a brilliant surgeon. He did it all by keyhole, this was nearly 2.5 years ago and you can't tell I have had anything done. I went in on the Monday and was discharged Tuesday. Best thing I have ever had done. So I wish you all the best and I will be praying for you. Did you ever get to see your family dar58? Keep us posted, and I hope this year turns out better for you, blessings Jimeka

WAshingtongirl profile image
WAshingtongirl

dar58 , I can somewhat relate to where you are. I can't tell you how sorry I am for what you face and have already been through.

I've had two bladder surgeries (cystocele and urethrocele due to uterus prolapse, then another cystocele repair 2yrs after the first one) and another surgery 2 yrs after that for a rectocele and enterocele. A hysterectomy was performed (ovaries not included) during the first bladder suspension.

Those surgeries were performed prior to my first MS symptoms, and were due to large babies and my weak insides. 😉

To be absolutely honest with you, the bowel surgery recovery was somewhat painful, but that was 30 years ago and I'm sure they've perfected the surgery since then.

It sounds as though you really need the surgeries. Chronic UTIs are my Achilles heal--a 4-month recurrent UTI a year ago really complicated my health. So while this all may seem daunting, I pray you view this as a way to remediate your UTIs, as those really do affect your MS and Lupus.

I'll be praying for you. 💕Dawn

CalfeeChick profile image
CalfeeChickCommunityAmbassador

I've had a full hysterectomy at a young age, 28, because of pre-cancerous cervix. It was one of the best things that ever happened for me. Never had any other problems. My daughter had surgery for prolapsed uterus and eventually had to have hysterectomy anyway.

I sure hope this surgery goes well, you have a healthy and complete recovery. Please keep us posted.

erash profile image
erash

dar58 sending u well wishes and prayers. Hope all goes well and this resolves the UTI s

greaterexp profile image
greaterexp

I have not had the adventures you're facing, but everyone I know who has had similar surgeries have had great recoveries and were so glad to have had the surgery.

We will be praying for a complete and swift recovery!

Dpjinx profile image
Dpjinx

Wishing you well.

Amore55 profile image
Amore55

I had a hysterectomy about 10 years ago at age 46. It was the best thing I ever did for my body. I gave birth to 8 children in 10 years which pretty much wrecked my female parts. My doc was fabulous. He left my ovaries, but I could tell when they stopped producing hormones about 5 years ago. You will be so glad to have it done. Like Jimeka said, I went in one day, was out the next, feeling like a new woman! Best of luck to you. Will keep you in my prayers. Kelly xx

Eleyne92 profile image
Eleyne92

dar58 , you have a lot going on there. I'm sorry to hear it, but I pray your surgery(s) go well and you get the relief you need.

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