My game plan to outsmart Secondary Progr... - My MSAA Community

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My game plan to outsmart Secondary Progressive MS

purpletustin profile image
9 Replies

Undiagnosed for 20+ years. Now I'm 71 and figuring out how to outsmart Secondary Progressive MS. Some days it outsmarts me and other days I win. Work hard to keep your spirits up. Keep reading and learning about MS. You must be your own advocate.

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purpletustin profile image
purpletustin
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9 Replies
Tinker-Belle profile image
Tinker-Belle

Good luck! Right there with you... I am choosing to be thankful for every day. It will not win...although sometimes I may stumble (figuratively and literally).

mskleva46 profile image
mskleva46

I'm right there with you. I'm 70 and i was diagnosed when I was fifty-two, although I know I had RRMS when I was thirty-five. I now have SPMS, but I still have many blessings to count every day and have a lot to be thankful for, even though some days are better than others.

RobertCalifornia profile image
RobertCalifornia

Exercise, stretch and have a good diet. They help me tremendously.

agate profile image
agate

@purpletustin, after many decades with SPMS I'm still learning about it. I have found that I do best if I try to keep to a fairly rigid schedule. No late nights, no days of overdoing, 3 meals plus a snack at bedtime every day, an afternoon nap without fail. And as RobertCalifornia said, eating nutritious food and exercising are really important for everyone. The rigid schedule and the afternoon nap are what work for me. They might not work at all for someone else.

purpletustin profile image
purpletustin

Your comments seem very practical and doable. I'm going to put more effort into following your lead. Thanks so much for the pathway you've suggested.

Kj9681 profile image
Kj9681

I'm with you!! MS ticks me off some days so bad, I could kick the wall!! Then I realize, ummm...probably not a good idea!! Keeping BOTH feet on this ground no matter what!! Thanks for the post my new 70+ MS warrior hero!! You go with your bad self!! 😊 Blessings

CalfeeChick profile image
CalfeeChickCommunityAmbassador

Wow, I get to be kid in group. I'm 68 and was just diagnosed in August. I was very active person until I went numb at end of June. Still getting further evaluations at UCSF for definite diagnosis. Will that help determine stage or typ of MS?

Shelly36 profile image
Shelly36

I was dx at 40 and i have 3 wonerful kids. They are my motivation, my comic relief and my exercise partners :) I know i will be running and playing with them in no time, once I can feel the lower part of my body.

As Dory says " just keep swimming"

Okay i just dorked out on you all, but i made you laugh

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toShelly36

That you did Shelly36 :D

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