What I would like people on the site to accept is their pain is real, it is theirs. We need to mske sure our doctors understand what our days are really like.
Personally, I fight constant fatigue. I fight the constant feeling my arms and hands are on fire. I fight them trying to smile at every person I come in contract with. I fight it knowing I wilk never pick up my granchildren, but I smile because I can still read her books and watch her favorite movies with her.