Nethertons Symdrone...: Has anyone ever had or knew... - MY SKIN

MY SKIN

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Nethertons Symdrone...

Gabbyeva54 profile image
Gabbyeva54Volunteer
3 Replies

Has anyone ever had or knew someone with Nethertons symdrone, because very few people have this ( 1 in 200,000) I would love to know what they do to help with it and prevent breakouts. I couldsider myself lucky as I have read up on it and have found that my case is less severe than many others. But if anyone has any help/ hints I would love to know! :D

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Gabbyeva54 profile image
Gabbyeva54
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3 Replies
Cherry1303 profile image
Cherry1303

Hi Hermione54,

I am asking some expert dermatologists and will see if they know anything.

Gabbyeva54 profile image
Gabbyeva54Volunteer in reply to Cherry1303

Thanks! :D

Hello Hermione54,

Do you reckon this is something you would be happy to talk to the press about? We're always always trying to build on our case studies who help with press work, and someone with your condition and situation would be a great addition in the effort to try and spread awareness about skin disease and what living with one entails?

What do you think? Feel free to have a read here about helping in this way: bit.ly/n8iVv1

Or you can contact me on 0207 391 6347 or bevis@britishskinfoundation.org.uk

Thanks!

Bevis (Communication's Manager at the BSF)

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