hey!!!!!: any y'all get told by a doc that you have... - MY SKIN

MY SKIN

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hey!!!!!

FeliciaMarie profile image
β€’65 Replies

any y'all get told by a doc that you have thyroid issues or low vitamin D???????????? Trying to figure out what we all have in common. Ruled out Dope!!! now there is MRSA Which is staph and then theres Candidiasis I need more info from you guys !!! Thanks 😚 So again my question is any y'all's get told by DOC THAT YOU HAD LOW VITAMIN D???? ALSO THYROID ISSUES???????? HMMM???

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FeliciaMarie
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SaltyCoon profile image
SaltyCoon

so I live in mninnesota- meaning we are all low on vitamin D here - so thereβ€˜s that. My dr has tested my thyroid many times because all the women in my family on my momβ€˜s side has had hypothyroidism, however my numbers have been at opposite ends every time Ive tested, ( but stilll in the normal range , but on the high end or extremely low end of it, which i think could mean my thyroid is having trouble regulating itself if im not mistaken) I have had Mrsa since I was 5. they now say its a life long thing once u got it , u got it .it will just lie dormant waiting for the next outbreak🫠.i used to go fast . Dont really even drink , maybe once in a while. Wont go out anywhere if i dont have to, too embarrassed of my skinπŸ˜Άβ€πŸŒ«οΈ. I am non menthal smoker. (Camels to be specific) as a kid i had strep throat a lot partially do to the fact that i am methacillin resistant, and they give u a shot of penicillin for strep throat, which wont work on me because it is part of the methacillin family. So i think i never got rid of the strep until later when i was put on antibiotics for a sinus infection that turned out to be a mass tumor formed by nasal polyps- yay! Hope this info helps! Im thinking this is headed in a much needed direction😁😎

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toSaltyCoon

antibiotics was the start of all this for me. Doctor gave me antibiotics for a pimple πŸ™„ I took them cause I trusted the doctor but he didn't even have a diagnosis yet the results. I think doctors should not be allowed to hand out those kind of meds without a proper diagnosis or at least till they get the test results back. I had that happen probably 10 times doctors handed me antibiotics for no reason then I contracted thrush which they didn't detect till it almost killed me. had the shot in my ears nose and throat. I wonder if everyone here has an immunity issue. Sometimes I think theres something in the air like mold spores embedding into our skin. I got mad in the past cause noone knows what the hell it is which dont surprise me if they cant even pick up on a yeast infection (thrush) feed me antibiotics makin the thrush worse then how they going to know what this is. but anyway I got mad in the past and would always say I got mushrooms growing out of my skin wtf is this !! It seemed similar to a mushroom or slime mold yeah know. I read about biofilm and how bacteria and fungi are resistant to treatment because of the biofilm they produce they use our cells that we naturally produce like collagen and karetin to form a capsule to basically have a party and coexist with bacteria. Typically fungi and bacteria do not coexist that actually antibiotics was created using fungi and the man who invented antibiotics got this idea from testing the ground around a mushroom patch under a tree and found no bacteria around. You can research antibiotics and when it was created and how. So these biofilms they construct they found that bacteria and fungi coexist inside the biofilm like on big happy family its strange. I'm fasting as of now I figure if I can't get help from doctors I will starve this shit out of my body. Im hoping anyway. Im already starting to get some energy back its been 2 days of nothing but water. It hurts really bad and I caught myself sleep walking to the kitchen I woke up standing at the fridge so I told my boys to put a lock on the thing cause obviously this shit inside me is so powerful that it meeds food to survive literally controlling me in my sleep fuckin creepy..... I noticed when I ate something especially anything with sugar I would have to get my walkin stick out cause I literally couldnt walk without PAIN like alot of pain. Since I've been starving these two days so far I can walk with ease almost run. The did find that I have hyperthyroidism with hashimotos which is odd because I gained weight pryer to finding this out. gained it really fast too. I just wonder if the candidaisis is what caused my weight gain and also caused my thyroid hyperthyroidism issues. what no doctor can tell me is why if i have hyper thyroid why did I gain instrad of loose with hyper you loose weight with hypo you gain makes no since unless theres an underlying cause for the hyperthyroidism like candida and candidiasis must be hard to detect I reckon unlesss you have literally a white thick patch on ur tongue and throat! I was feeling sick and my throat was so raw I couldn't eat or hardly drink and I was pregnant at the time which worried me. but they kept testing me for strep and it was negative so they threw antibiotics at me to get me out there office never once did they test me for candida !!! It was a hell of a time and I went to 10 different hospitals. went thru 17 months or more with this yeast before they come up with diagnosis of candida !! thats incredible!! Sad they wait till your near death to help you out!!! They'll help a drug addict before theyll help a pregnant woman!!!!! I know this for a fact!!! my guess is they make alot of money from people addicted to the drugs they dish out!!!! those methodone and Suboxone clinics big cash cow !!! and I warn people about taking that shit cause they didnt really test the long term effects of Suboxone on anything so basically the people who are on soboxene are ginny pigs they are the test!!! I'm no fool and I refuse to take they're drugs. Mind over matter. Smoke some weed people dont take those chemicals my sister was takin soboxene lotta good it didnt do cause shes back to meth again so what the fuck lolπŸ™„ those clinics advertise these drugs to get off drugs lol whata joke 🀣 just substatuting drug for another that you know nothin about am I right. I dont take nothing but ibuprofen for a migraine I get those to often but its simmered down as long as I keep my nasal passages clear. which is difficult cause my nose constantly gets this sticking film till it clogs my passages creating a what I call a fungus ball it can get big and hard and impossible to blow my nose it sticky so I have to go after it with tweezers aggravating asf!!!!!! but if i don't get it out I get massive migraines!! Something happened to me cause im nota hypercondract, I used to be 100%healthy 12 years ago then I had my first child in 2011 and started this whole thing my kids have never seen the real me just the sick version and its fucking tragic and I have exhausted myself and wallet going to doctor after doctor the mrsa i was hospitalized when I got a MESH put in me for hernia repair twice. the second hernia repair put me in the hospital for 3 weeks it got infected and I got deadly fever , cellulitis, almost dead when they took me in fever was to high wouldnt break worst headache i ever experienced with that fever emergency surgery they left the mesh in 🀨 but removed all the dead flesh sick asf shoving all that cotton in me afterwards everyday had to repack my wounds it was like hamster tunnels thru my mid section were the had to remove the dead flesh from the mrsa . they should call it flesh eating bacteria cause thats what it was.... they gave my intravenous antibiotics that even that didnt seem to help. It took care of it spreading further thru my mid section and i kept it clean and repacked it everyday with 10pounds of goz he said he was gonna take the mesh out but to my surprise i wike up in hospital and he said he left it in that it was to delicate of a procedure that the mesh was basically embedded into flesh and was part of me now he told me if the infection comes back then he'll go head and take it out. happened again i was 5 minutes late for the surgery hed already post poned on me twice but by god im fice minutes late and he canceled me and then i get a letter to find another doctor and not to choose a doctor thats affiliated with them which if thats the case id have to go to Columbus or something which is a four hour drive !!! i tried Parkersburg but they wouldn't take me cause they are affiliated with Marietta memorial!! hows that you ask Marietta is ohio Parkersburg is West Virginia

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toSaltyCoon

sorry I have noone to talk to haven't had any human contact for 8 months so far other then doctor appointments and my ,2 boys ... I wrote interally to much apologizes for that. The result of keeping shit bottled up. Thanks for listening. ANYONE HERE EVER HAD A MESH IMPLANT????

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toSaltyCoon

wonder if these slimy white plugs aren't result of antibiotics abuse whether you took them in the past or not just caused breakdown of your defense against everything!! I want a diagnosis its hard to get help its like a coin toss you arent always broke out right so your appointment has to come on a day you are they don't care either way they get paid. I got one emergency room doc to pull one out and hold it in her hand she didn't know wtf it was not even an educated guess!! πŸ˜‚ that makes me feel real comforted! she referred me to a dermatologist which long story short didnt work out but least I got to show someone!!! besides pictures or my dad or my ex when you don't het answers it dont matter wtf you show your family they automatically think your nuts they can see it clearly its something bad but ignore everything just because you aint found a doctor to give you a diagnosis!!! So I day FUCK THEM !! ID BE THERE FOR MY LIVED ONES IF THEY WERE SICK i love them but fuckin go to hell exactly what i say when im all better cause i hangin on to hope dear life.. have a good day oh btw do you live in a moldy place? damp place cause hell I gutted my place literally cause i thought mold was the culprit!! got pictures of before and after to proove it . went crazy wanted answers wanted myself back and to be happy with my children and scared to death theyd get sick like me they had avductor diagnos both my kids with heyfever weird part about that is it was winter time snow on the ground !! heyfever?!!?! 🀨 the pharmacist is the one who actually said to me thats weird id look into that if i was you heyfever in winter ?? so I did ! started to find hidden black mold everywhere!!!!! then cps took my kids from me cause my dad run his mouth said we were sleeping on mattress on the floor my place was getting tore apart !!! fucked up ,!! hecwas jealous that i got 12,000 from a c8 settlement case USING it to rebuil my house they ambushed me i tested dirty for pot and my house didnt look good BUT WE WERE REBUILDING THE MFER WHAT THEY EXPECT!! PAST IS PAST HOPEFULLY CARMA GOD FATE WHATEVER YOU WANNA LABEL IT FINDS THOSE WHO HURT ME AND MOSTLY HURT MY KIDS BY SEPERATING US !! WE'RE TOGETHER NOW BUT LIVING IN CONSTANT FEAR OF GETTING SEPERATED AGAIN. TIMES HAVE CHANGED !! I REMEMBER GETTING ABUSED AND WATCHIN MY STRP MOTHER SNORT COKE OFF A MIRROR EVEN TOLD MY TEACHER AT SCHOOL ASKING WHAT IT WAS FOR FUCKIN CPS DIDNT TAKE ME AWAY WHEN THEY Should HAVE !!! TIMES CHANGED YOU PISS OFF YOUR Neighbor THEY CAN CALL AND HAVE CPS AMBUSH YOU YOU DENY A DRUG TEST THEY GET TAKEN YOU TAKE INE And fail THEY GET TAKEN SOOOO BEWARE ITS NOY LIKE THEY PULL UP IN YOUR DRIVE WITH A CPS LOGO ON There Vehicle IF THEY DID PEOPLE WOULDNT ANSWER THE DOOR πŸ˜‚ THEY DONT WANNA HELP KEEP Family TOGETHER THEY WANT TO SPLIT YOU APART THAT BOILS DOWN TO MONEY AS WELL I CAN ELABORATE ON HOW TAKEN KIDS FROM THERE PARENTS HELPS CPS BUT IM TIRED OF TALKIN MAKIN ME SICK BYE FOR NOW

Valbert profile image
Valbertβ€’ in reply toFeliciaMarie

Oh, don't I know all about cps. I asked for help (big mistake) bc a dude was physically abusing me, and they took her away. I jpes through E ERY πŸŽͺ hoop they asked of me and I got no more rights than a woman who almost beat her child half to death. My mother had the idea to adopt my daughter to hurry up and be done with those people and I could see her whenever we chose to. And that is what we did. For the longest time, I swear I have cptsd over the entire incident. As for sugar, stay far tf away from sugar or you will soon realize that these little bastards THRIVE on sugar. Starve those little c*@$k bitin' little heffers!!! Take supplements YES! Magnesium, Vit D and D2, Vit C, Zinc. Funny (not really) but I don't eat near the same stuff as baby daddy and my son and BD has far worse than me!

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toValbert

wish I had that kinda relationship with my mom but she just stole my newborn and forgot me. If it wasn't for her retiring she would not even think of taking my baby. She seems to want another shot at motherhood on my expense its something she'll hopefully pay for in the afterlife cause it should be a sin to do what was done to me

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toValbert

she never let me see him. They gave me 2 hours a week with my new born and my other 2 boys were with my dad they all teamed up against me especially when my dad started getting income tax with covid on top of it big checks for them so they were less likely to help me and i needed help i had no car anymore my baby daddy was gone he is another story its so dark I cant speak of him. lets leave this short im not writing a book but I feel you

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toValbert

2 hours a week until they decided themselves i could not have any contact and i brought it up in court nothing was done about it ! This is God's truth I have no reason to lie. I'm not a liar dieing will do that to a person.

FINNYMIN24 profile image
FINNYMIN24

No and no.

I've not been tested for MRSA but lived with a guy that had it...?

I've never had anything! Never been in hospital, no broken anything, NOTHING.

Just this life ending hideous plug existence with my once clear , healthy skin.

JUST THIS HELL SKIN GIG AT AGE 55. Im turning 60 in April. No clue STILL as to what plagues us.

GMO via our food/groceries? quite possibly. This is similar to a "rooting" system in plants.....but made with my own (collegen/keratin)..?

What triggers it though? What have we done, ate, been exposed to?

I feel ya gang. It's a nightmare. It has SO affected my life, personally, professionally, mentally, socially etc.

It takes me an hour to find something to wear (if I don't cancel or call in) that will hide the lesions de jour!

Let's keep talking g about this crap!!

FlowerGnome1 profile image
FlowerGnome1β€’ in reply toFINNYMIN24

I feel you about the getting ready for work. Not to mention any draining stains it might create on said garment. And the trips to the bathroom to check on it because it's itchy and causing pain. It's frustrating. Embarrassing. Painful. Makes you feel crazy. Exhausting.

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toFINNYMIN24

does any one here HAVE BLACK MOLD OR ANY KIND OF FUNGI IN THERE ENVIRONMENT???? LIVE IN DAMPNESS??? I DO ..... Figure out what we all got in common. Hope we all dont have cancer.

FINNYMIN24 profile image
FINNYMIN24β€’ in reply toFeliciaMarie

Yes. The year I acquired it, 5 years ago , I was living in a place that had allegedly, BIG " prior" mold issues. Same MONTH , I got my cat, AND worked in neighbors yard in shorts, with open bicycle crash -gash wound on leg. Her yard was...disgusting with cat, rat, coon, dog waste... so

Sounds like it could be the perfect storm for an Alien Flesh Eating g I g like the one we have.

Felicia, like I said...I think we're 10-20 yrs out on officially diagnosis or medical industry acknowledgement. We're fucked.

Keep in doing it Chica. Hang in, on, or just strap yourself in. It's been a violent ride learning much of life as we knew it.....is gone forever and we thought we could just go pick up a script and wham oh!!

Oh Contraire Mon frere!!

We be in hell. It's literally "flesh eating".

Later Man,

Genuinely,

Jill

FlowerGnome1 profile image
FlowerGnome1β€’ in reply toFeliciaMarie

Yes. I lived in a house that a tree fell on in a hurricane. When we moved we found the mold was in our closets the most. I lost so much stuff because of it. Clothing mostly. I couldn't get the smell out. After we moved out I started smelling on wooden items and I went and got a mold killer and washed all the wood I had. I was so sick , but I attributed it to the lyme I was being treated for and this is when all the skin issues began. 😳 ok. Let's keep talking this out. And yes, we don't want it to be the c word and that has already been thrown at me this past week. I'm tired. More biopsies, more test. Frustrated.

SaltyCoon profile image
SaltyCoonβ€’ in reply toFlowerGnome1

Im glad you mentioned wood ticks! I have never formally been diagnosed with Lymes disease, but i know i had aplenty of ticks on me in my lifetime. And for awhile there any cut any pimple or anything would get a bruise around it and looked like a bullseye. Maybe it has something to with mold, mrsa , and lymes disease? Seems to be like those are our common denominators . Methicillin resistant moldy lymes disease, lol. Sorry im trying to not get frustrated but i always feel like we have almost got this figured out and then bam back to square 1 again…. Hmmmm im thinking ….

FlowerGnome1 profile image
FlowerGnome1β€’ in reply toSaltyCoon

You're completely fine, don't apologize. We are frustrated. We are angry. With good reason. The hospital where I live has built a "Pavilion Medicine" that's in a remodeled old mall. They have so many doctors on staff now. They are also a teaching office, so these young ones i have been seeing have literally made me feel like I'm on an episode of House. And are now moving mountains. Especially since my twin has now got what appears to be the same thing, in the same spots on them. We did reside in the same molded home because of his disability. But haven't resided together for about 5 years now. The pathology report stated it had a glue like attribute to it. I have pics of my clothing literally sticking to the lesions and me having to peel the shirt away exposing what literally looks like white school glue sticking it together. It's on my skin, my shirt and it pulls any scab off. This is my proof I ain't messing with it. They see it now. If you go back to your doctor, please request a new biopsy, ask for it to look for mold, cancer, and demand a wide spectrum test be done. Bullous pemphigoid is what mine found. If you have the glue like stuff with your lesions, which I've had this huge spot for 2 years and 3 months now, and the glue has only been happening the last 6 months or so. It can produce blisters in the mouth as well. I've had a few, but nothing that stayed more than a few days. I am currently awaiting a immunohistochemical staining biopsy. Pathogist is so insistent it be done, he is donating the special fluid for it since I'm broke. I have been through the doctors shuffling me around. But once I got to the right team, the ball starting moving. I've been from "That looks like cancer, you need to get that looked at, and since your PC doctor will be back 2 weeks, you can follow up with her. " to "no way that's lyme related" "lyme doesn't come back". I have felt rejection for over 2 years with this. And I am very grateful to be getting answers. But beware, this is possibly and autoimmune issue and there will be other autoimmune issues present. I have celiac too. I am finally, after 10 years of trying to get one, I'm finally have a follow up MRI and MRA. It's believed I have MS, and I already have an AVM in my brain. Which that is very separate from the lesions situations. MS can cause this. I'm hoping for more info. I have MRI, etc on the 15th this month. Still waiting to get the staining done, as they are struggling to get it ordered properly for the hospital program I am in. I'm trying to be patient. But I also know that in a week, my life may look completely different. We need to stay vigilante. I will continue to share what info I have in hopes it will help others. Best wishes. Hang in there. We got this!!!!!

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toFlowerGnome1

it is very frustrating. I do not understand why noone has gotten a diagnosis of what this is. I'm not on drugs and Im not a picker. I'm just so sad. My family doc wants to send me to Chillicothe ohio like 4 hours from where I live to infectious disease doctor to see about mold illness 🀷 hope they know what they're doing. All the hospitals closer to me do not test for mold illness so I have to travel away. which stinks cause you know its going to be more than just one trip and I'm hoping the state services gives me a ride cause I don't have one. My family doctor has not even seen my skin issue because I do not want to tell her or show her anything!! Thats were i am at right now lol I know its something internal making this happen on the skin so I'll let them figure it out before I present this because for one I dont always have these things poking out and I also dont want them to think im insane she probably already does since I told her I took horse dewormer!! One of these days all of us outa get together have a picnic have a good time we deserve it! THANKYOU for writing me and hang in there 🌹❀️

FlowerGnome1 profile image
FlowerGnome1β€’ in reply toFeliciaMarie

Curious. Have you been diagnosed with celiac? Or MS?

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toFlowerGnome1

no I haven't but that don't mean they tested me for it right? I'll request they do see what they say.

FlowerGnome1 profile image
FlowerGnome1β€’ in reply toFeliciaMarie

Celiac is usually diagnosed via an endoscopy and colonoscopy. A gastroenterologist would diagnose it. A positive ANA can be an indicator for it as well in your blood work. Have you had H Pylori? It would be the precursor to Celiac diagnosis.

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toFlowerGnome1

I've had a colonoscopy like 6 years ago because they took my gall bladder which I regret doing. They said they saw nothing abnormal which im surprised but them taking out my gal bladder caused my hernia my second hernia.

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toFlowerGnome1

its like it causes other problems like my thyroid issue and ADHD I cannot get help for. I'm on absolutely no medication and have been besides that thyroid pill levothyroxine they dont know how muchto give me really or whats going on they say hyperthyroidism with hashimotos

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toFlowerGnome1

another thing I want to do is I have a black Walnut tree im making a cleanse and other plants i find in the woods thats good for us like this

wild flower
FeliciaMarie profile image
FeliciaMarieβ€’ in reply toFeliciaMarie

burdock plant

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toFINNYMIN24

what year did you get these plugs? Guess if you don't remember. thankyou 😊

FINNYMIN24 profile image
FINNYMIN24β€’ in reply toFeliciaMarie

2019

SaltyCoon profile image
SaltyCoonβ€’ in reply toFeliciaMarie

I got it when i was around 19 years old so it was about 2003 if i had to guess

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toFINNYMIN24

i wonder if these tiny bug bacterial or fungal or both don't maybe create these white plugs collagen/ karatin whatever there made of i know they're water proof like fat would be non soluble right ? I forget.. but build these for defense against antibiotics or your immune system period they are creating these biofilms to stay inside protected.

FINNYMIN24 profile image
FINNYMIN24β€’ in reply toFeliciaMarie

Ya know Frlicia, my face, thank the Universe, wont take it. None of these f#$%#$s will stick to my face. If I can be grateful for anything....thats it, so I can still work and date until they want to f#$k, then Im f$%$#d

FINNYMIN24 profile image
FINNYMIN24β€’ in reply toFINNYMIN24

Lol this shit IS making me crazy

FlowerGnome1 profile image
FlowerGnome1β€’ in reply toFeliciaMarie

I have had an epiphany. It may be nothing. How many of us had the depo provera shot???? I did for 3 years. Let's see if we can go way back to find connections somehow.

SaltyCoon profile image
SaltyCoonβ€’ in reply toFlowerGnome1

Nope. I had uterus cancer so they wouldnt let me have the shot or any other kind of birth control alternatives. Tried the patch but that didnt work cause im way too sweatyπŸ˜‚πŸ˜Ž. Anywho was on birth control pills gor like a decade at least on Levora i think it was called . I started getting these plugs same year i had uterus cancer .

FlowerGnome1 profile image
FlowerGnome1β€’ in reply toSaltyCoon

See, this worries me. I've had a hysterectomy, but have 1 ovary left. I demanded it all be removed but my doctor said no. Now, I've been worried for several years that I have ovarian issues because of a rash in that low area. Noone seems to want to look at that. Just the lesions on my seen skin. I've got pictures of the rash and Noone will look. I'm in a holding pattern still. I had second biopsy yesterday 10.29.24. It is said it will confirm the Bullous pemphigoidriod. Reading up on it, usually a year in, cancer is found. .....wait.....omg.....I had my hysterectomy in Feb of 2016. My first lesions were in the fall of 2016. ...... I NEVER EVEN THOUGHT ABOUT THAT. Well if that isn't a warm fuzzy feel. NOT. UGH. I just want answers. Just send good vibes for the sweet pathologist that donated the biopsy serum that had to be used to help me. And for good vibes with my appointment tomorrow 10.31.24. I know I won't have biopsy results, but hoping to hear from MRI and MRA results. MRI may answer this. May not. I have a suspicion of what mine is, but I'm not a doctor, I just know what I've been through for the past 20 plus years. And I know what I've read on my own results from a radiologist and neurologist. No insurance makes it harder to get a diagnosis because I can't line people's pockets.

MeToo_Aus profile image
MeToo_Aus

I’m about 2 years in, no thyroid issues, low vit D, elevated CRP, elevated LDH, alp & ggt up, low iron, elevated lipids, elevated wcc, negative ena, ana & RF

I keep a file with me with hard copies of the results of tests since issues began in August 2022, 3 days after my 4th covid vaccine

Since then, I’ve been diagnosed with anaemia, Raynaud’s, pulmonary hypertension (Cpc-ph), emphysema, severe NAFLD, worsening GORD, IBS, benign polyps from one end to the other, 2x very large gall stones, widespread tendinosis, oesophageal dysmotility, Dupuytren's contracture, ED, severe refactory hypertension (170/110), Sicca Symptoms, possibly Gottron Papules, visual aura, bilateral carpel tunnel, β€œabnormal thickened skin” and probably a few others I’ve forgotten.

I’m waiting on rheumatologist appointment (my second rheumatologist ) and have already been seen, and dismissed by about 14 specialists, all of whom state that the issue I’ve seen them about, is caused by something another specialist group is responsible for managing. So just bounced doctor to doctor.

I’ve been told there’s definitely something going on, but I’ll probably never find out what it is, despite it literally killing me.

Doctors don’t have the time to even listen to the whole list of symptoms I have, so how could they possibly look holistically to determine a cause.

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toMeToo_Aus

have you ever had thrush( candidiasis) due to antibiotics?? Do you live were mold grows (damp environment)

SaltyCoon profile image
SaltyCoonβ€’ in reply toFeliciaMarie

So, I just made it through another terrible flare up of this shit and my face has now calmed down and is finally lesion free for now. About the mold . I am very sensitive to mold. And I have noticed when I have flare ups I cant help but notice that someone around me has some kins of yeast infection on there skin or I end up finding mold / mold spores growing in a corner somewhere or growing on some sort of food in my fridge . Its weird because when I do have flare ups it seems that the food gets moldier faster than it should or normally would. And so now when I get these little buggers again that is the first thing I start looking for . Once i clean up the mold my skin starts getting better, mind u i still have to pull the plugs out for it to go away go away if you know what i mean .otherwise skin will just grow over it and appear to have healed but you can see where it still is ,still feel its there(pain doesnt go away until they are out)and if you bump that area or scratch it on accident or on purpose that skin comes off rather easily and whambo! Your right back to where u started , those things dont just magically dissapearπŸ₯². I was thinking about the thrush thing. But im not sure its relative because ive been getting these things before i had my ear nose and throat thing ( thrush but not thrush) . I woke up one morning and by the the afternoon I couldnt swallow without crying , literally. Have you ever had a canker sore but not by your gums or on your lip but rather have one on your tongue ? I used to get one every once and awhile , i was told by somebody that its a salt bump. But its basically an ulcer on your tongue which means your mouth is too acidic . By the end of the day my tongue was covered in these blister like bumps so I went to my dr . I didnt know what it was thought maybe a kind of thrush? My dr said I had a bacterial viral infection which isnt common to happen at the same time. Dr. Said he couldnt give me anything for the one infection until the other one was gone and vice versa . Giving antibiotics would only get rid of one but not the other so literally i would have to wait until each one of them had popped on there own and then they would give me medicine to fight off the other. Those ulcers covered my whole tongue all the way down my throat , up into my nose , and up into both my ear canals!! The ones that hurt the worst when they popped were the ones up in my ear canals. One would pop randomly and would drop me to my knees! It would make me cry! I couldnt eat anything for two weeks besides popsicles but they were gone they were gone. I never went in for medicine. The dr had said i could have gotten from painting in doors without proper ventilation and for not prewashing the walls if i remember correctly something also to with mold. Before that when i was like 14 i had sinus surgery twice due to β€œchronic sinusitis” which i received antibiotics for 6 years of increasing doses and stronger antibiotics which ended up being nasal pollups growing and massing into tumors in sinus cavity. This was caused by mold I found out several years later. My mom went to put new windows in my old room and they literally had to cut out an extra foot around the windows because of all the mold growing in the walls around my windows(found black , white, green, and even a little bit of pink mold was growing in there. They figure I slept with my windows open at night with my door shut so I was breathing the shit in as i slept. But the second surgery they ended up removing the lining in my sinus cavity, so they wont grow back. And they havent. I get tonsil stones all the time . Those are gross . Gave been getting them longer than ive been getting the plugs . Was told they were going to remove them (tonsils)but then they never did. So I beleive that mold and mrsa and hair follicles have something to do with these plugs. Does anyone else drink anything but water? I absolutely hate drinking water and avoid it as much aa possible but wouldnt be surprised if the lack of me drinking water could also play its part. . I sure hope we figure this shit out because I absolutely hate the way people look at me when i have flare ups. Makes me feel helpless..

Typical plug or under scab plug or root
FeliciaMarie profile image
FeliciaMarieβ€’ in reply toSaltyCoon

yeah there it is. Im so sorry this sucks I was always told by people I had beautiful skin and since these things I'm all scar up.. its ruined me mind and body. I still hang on to hope. Maybe I'll get better and even though im scar up maybe somebody will still love me. 😭 I know what you mean about the water I'm a water drinker I love it as long as its good I taste the difference but since I've had this for around 13 years I dont crave water as much but stuff I normally do not drink like pop and juice. Crazy how whatever makin me sick causes me to be a zombie controlling my mind I started sleep walking to the kitchen lookin for sugary anything!! woke up with ice cream in my bed I was so appalled and frightened by this I had no memory of it. Now my kids are goin nuts cause I will not buy anything sugary I don't want it in the house otherwise I'll have to chain everything and give the kids the key πŸ˜‚ I force myself to drink water it was difficult I got dehydrated so I started starving myself and everytime I'd feel hunger pain I'd start jugging water. Its been working for me. I swear I think these are mold related or fungi it almost feels like I got a slimy mouldy mushrooms growing out of my skin cause do you notice how slimy these white plugs are and sticky? I had like a crop of them under a scab once and they were all from one pore it was so disgusting!!! they were like all fused together as one but then branched out !! So fuc*in sick !! Dont show anyone unless you trust them with your life !! Otherwise they will leave you quicker then you can turn around. Its not that they think your crazy cause you clearly see these white slimy splinters so its not imaginary. They still just turn they're backs on you and then blame everything your going thru on you. They deny your sick and do as everyone else has done and call you a drug addict. Or that your going thru a hard time in life and its caused by stress and picking πŸ˜‚πŸ˜­ People that dont experience this just dont care cause its not happening to them or anyone else they know. Some people are closed minded and thats that. If its not happening to them and theres its not there problem. Makes me sad. I feel like a witch cursed me or something. Why this happened to me!! I believe it is ANTIBIOTIC RELATED TO POSSIBLY. My kids didnt get them... my ex which is they're dad didnt get these 🀷Just me... my kids did get these patches on there skin though from the time they were born and lived here all they're life they're 12 n 13 now. The doc said my kids have eczema/ psoriasis yet the treatment never worked...and in winter I took them to the er couple times for cold like symptoms it was hayfever!! the pharmacist said hayfever in winter thats weird id check into that.. has to be indoor air quality!! Neurological issues one of my sons have as well. Ill write more later this is long enough. 🌹❀️

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toSaltyCoon

Oh yeah since I was hospitalized for thrush 12 years ago I started getting tonsil stones too when these things started in my skin.

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toSaltyCoon

oh yeah I forgot to tell you I've never had cancer sore but I had thrush so bad I couldn't eat drink or sleep id rather break bones than have that nasty shit in my throat ears and nose again. Took them forever to tell me it was thrush and don't know how i got it other than going to the hospital to see my baby doctor cause i was pregnant. Picked it up there or something idk how but my pregnancy also made me vulnerable cause of a person immune system being pregnant and all . BUT WOW THE TIME IT TOOK SO MANY DOCTORS TILL ONE FIGURED IT OUT IS CRAZY

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toSaltyCoon

shoot i meant canker typo ... nope never had them

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toSaltyCoon

yea I think mold has alot to do with it. Tonsil stones and these plugs I feel is a sign of infection of some kind in the body

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toSaltyCoon

the one thing you got control of is getting outside in sunshine you don't have to be facing the sun just get out in it. You don't have to been bare skinned to get vitamin d sun does alot of other thinks good too I feel better at first its uncomfortable but I do it anyway especially now that its cold outside. I drink nothing but water. Its good water its dads well water from the spicket outside. I am in the woods I don't know about you guys are you town folk? Or country folk? Might be environmental and antibiotics related molds hate sun and like sugar starches like breads pastas etc cut all that out get in sun force yourself. I do because of my kids being addicted to games im outside alot cause I took away all devices makin them play with me outside its been hell in my body but im out here and have good days and bad but I know its helping. Im getting stronger but its not enough I'm still working on figuring this out but leaning towards something of infection in the body somewhere could possibly be bothe fungal and bacterial and one day docs say its in my blood i need iv antibiotics then the next they say we made a mistake in a blood test. I asked if they're testing my blood for fungal to they say yes then like i said they call me urging me to the er to get intravenous antibiotics for 3 different kinds of mrsa an. d i get there they say it was a mistake and it wss contamination. While the prepared my blood we talked about that they were extra careful .... its really sloppy hospital work apparently know one knows there ass from there elbow. Can't even do a blood test right πŸ˜•

FINNYMIN24 profile image
FINNYMIN24β€’ in reply toFeliciaMarie

Felicia,Jealous of your forested living situation girl!πŸ˜€

Mold.

It's the common denominator so far after reading every post on here. Freaking mold.

I've never been tested for mrsa but lived with a dude that had it(?)

I lived in a house, 2 years with major mold issues.

I work in gardens a lot as a hobby, love deep wooded forests....but so far, our CD (common denominator) is MOLD.

I'm in middle of painful itchy flair up. Sooooo many times this year, I thought I'd discovered something to help it....nope. πŸ˜”

It really is affecting my outlook on life and most definitely the quality if it. I am disabled in a way.

This fucking bullshit pisses me off !!

I feel better!

Hey Gang. Hang in there.

MeToo_Aus profile image
MeToo_Ausβ€’ in reply toFeliciaMarie

Hi,

I’ve never had thrush, but have had partners that have. I’ve had impetigo before.

Yes to moulds. I live on 5+ac with the water table down only 2m in winter. There’s a lot timber debris and leaf litter with various moulds and fungi around. In winter my lawn gets a black/dark green slime like mould/fungus and I’m sure there’s parts of my house with mould.

There are natural wetlands nearby ~30m/100ft away that is marshy and my soil is quite black and fine

No animals other than native wildlife, and my water is supplied by rainwater harvesting only, with 2 stage (10u and 5u) filter and UV sterilisation.

There are mice and rats as hard as I work to keep them out as well as native bats

Previous owners (6 years gone) kept birds inside

Around the time it all started I began to notice tiny flying midges and there’s also no-see-ums at times of the year

Ejected from skin
FeliciaMarie profile image
FeliciaMarieβ€’ in reply toMeToo_Aus

living in moulds and fungi is what I'm leaning towards it being what our problems is caused from

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toMeToo_Aus

might have everything to do with mycotoxins from moulds n fungi

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toMeToo_Aus

please keep us updated 😊

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toMeToo_Aus

find a biofilm killer then the bacteria or fungi will be exposed to kill off I'm just throwing suggestions cause my doctors are lost I believe were not technically advanced yet.

FlowerGnome1 profile image
FlowerGnome1

Vitamin D2 deficiency and folic. 45ish days ago, now on script strength for both. What other common denominator have you found, please ?

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toFlowerGnome1

I'm so sorry,still workin that out. I'll get back to you on that.

FlowerGnome1 profile image
FlowerGnome1β€’ in reply toFeliciaMarie

Ok. I'm gonna let y'all know my results on my biopsy as soon as I get them. This hurricane had our town shut down. Maybe Monday I will hear something.

chazy profile image
chazy

Hi, yes I have had a total thyroidectomy many years ago because thyroid was totally messed up and full of nodules, I mean no viable tissue at all, it had to go. Vitamin D been on that years, many who live in the UK are advised to take vit d daily, we lack any beneficial sunshine for sometimes 9 months a year lol πŸ˜‚ I often wonder what is the root cause of a few of my chronic conditions as they are mainly idiopathic, a word I have come to hate !

FeliciaMarie profile image
FeliciaMarieβ€’ in reply tochazy

: ( I'm sorry I feel yeah I really do

Pianokey1 profile image
Pianokey1

i have no thyroid issues. I take d3 daily.

This is what’s helping mine:

Tretenoin 0.05% rx

Ivermectin (studies show heals sores w/o scarring)

and you’ll need a good moisturizer

Vitamin c serum in morning and spf

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toPianokey1

im always vitamin d deficient and have had mrsa and severe thrush trying to figure out the common denominator here

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toPianokey1

ivermectin didn't help not one bit πŸ˜•

MsHood profile image
MsHoodβ€’ in reply toFeliciaMarie

There is a cream at Walmart so Ivermectin. It's in the head lice section. I've been using that 3 times daily. And when I took the ivermectin orally I had to take 24 mg the first day and then 14 days later take another 24 mg. There are two doses. So, maybe try it again if it's been 14 days.

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toMsHood

ok I got mine at farm and tractor supply its horse dewormer I took the whole tube in a week span but ill try looking in Walmart for the stuff you suggested. THANKYOU ❀️❀️❀️

FeliciaMarie profile image
FeliciaMarie

im going after ivermectin but its horse dewormer how the heck do I take it ? eat the tube of paste ? lol

Pianokey1 profile image
Pianokey1β€’ in reply toFeliciaMarie

You can eat it but I heard it tastes disgusting. You can get an rx from doctor for pills

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toPianokey1

doctor aint gonna give me shit lol I dont have a horse anymore either so they are going to look at me like a crazy nut if I ask for horse dewormer. Thats the shit I hear works FDA has not approved it. its not for human consumption but whet do I got to loose im dieing here.

Pianokey1 profile image
Pianokey1β€’ in reply toFeliciaMarie

Dr.s do prescribe it. But yeah maybe for us β€œdelusions” they won’t. My sister got pills from Mexico you can get them at a pharmacy there. It’s a shame. Ivermectin is even used for cancers.

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toPianokey1

I don't care if it tastes like horse pucky I'm desperate

FlowerGnome1 profile image
FlowerGnome1β€’ in reply toFeliciaMarie

You can get it in liquid. The bottle is about $90 here. Use a syringe to inject and you can get both at tractor supply

FeliciaMarie profile image
FeliciaMarieβ€’ in reply toFlowerGnome1

Ill try that too ❀️ thankyou

Steak_1 profile image
Steak_1

yes liver and thyroid vitiman D also

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