Diagnoses psoriasis PPP.

[pool0009]

Hi all, I've recently been diagnosed with palmar plantar pustulosis and I am waiting for PUVA PHOTOTHERAPY, could be waiting 3-4 months due to backlog. The skin specialist thinks it's linked to me having Rheumatoid Arthritis diagnoses 9 years ago.

[Starfish123]

Hi,

I’ve not experienced this type of psoriasis but have had psoriasis since I was 5.

Over my experience of it I was told being autoimmune condition to cut out gluten as it feeds the antibodies.

Take vit d3, I was incredibly low and the psoriasis improved with treatment.

My son who has it much worse than I ever have had has to avoid milk, which he doesn’t so it continues.

I hope it helps

[pool0009 in reply to Starfish123]

Thank you for the reply

[Hidden]

I’m not sure if the specific type of psoriasis that you have but I had fairly extensive plaques (scales) in my legs & arms for years. Puva therapy worked incredibly well for me. I did it for almost a year I think & had an amazing sun tan & clear skin. For some this continues but fit me when I stopped the treatment the psoriasis returned. But we tried another treatment , methotrexate, that was less of a commitment & also worked well. I then had another treatment, cyclosporine, that again worked well. With all when I stop it returns. I’m now on biologics which requires an injection every 2 weeks. Overall this is the simplest to administer as I do it at home & it’s not everyday.

I’m so pleased I went through the treatment plans as although the puva was time-intensive (I had to drive 40 mins Each way to the hospital & then spend over an hour at the hospital several times a week) my skin being clear was worth it. I wish I’d done it sooner. I never felt I could because working around that commitment was too hard but in hindsight I should have put my skin first. For me the psoriasis affected my mental health & I wish I’d been encouraged to get the skin treatment sooner as it would have saved me anguish in my 20s & 30s.

That’s a long reply.

Hope you’re ok & the treatment goes well. Perhaps you could ask for the next treatment if there is a back log?

[pool0009 in reply to Hidden]

Thank you for your reply.

The psoriasis is on the soles of both my feet and find it painful to walk at times and am hoping the treatment helps when I get it as I work long hours on my feet all day. I'm not feeling very hopeful.

[Hidden]

Hi pool0009,

I know it is a few days since your post, but I just wanted to add that I have had Phototherapy twice-with several years in between the two. I was covered 90% and it worked so well. I too had an hours drive each way, but it was worth it. You start with literally a few seconds and then build up. It is quite funny if you think about it! I wore a helmet with goggles the first time as my face was clear, I got up to 7 minutes a session and I was completely clear-heaven. It lasted for over a year. My second time went as the first, only I didn't stay as clear for as long-so, I too went onto Methotrexate, but I'm on Aprimilast now. Best part of the light treatment was the tan with no lines! My students kept asking me if I went on holiday, though I was in school every day. Best of joy for you.

[pool0009 in reply to Hidden]

Sounds promising, hope it works when I finally get the treatment, might have to wait a while as I am on the waiting list. It's only on my feet thankfully so might have nicely tanned feet 😂

[Hidden]

Ah, yes! They do have lamps for hands and feet. Coral nail polish is the ticket with tanned feet!

[pool0009 in reply to Hidden]

😊