Hi everyone. I am new and this is my first post.I have Morgellons Disease. I itch all the time. I have sci-fi things coming out of my skin, i.e. triangular shape with a “root”,things that look like a nymph of a bug, fibers, black, red, white spheres that look like eggs, seeds. I have tried and tried to get rid of it, but the suffering continues. It runs in cycles: I get better for a while and then it gets worse and when it is worse, it gets worse and worse as time goes on. It is in my skin, inside my nose, inside my ears, especially something in my right ear that itches and/or hurts, my gums my mouth, my sinuses: I am just at the end of my rope. I don’t know what else to do.....
I am also bipolar 1.
Aken
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Aken
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Dear Aken, this seems to be a little understood condition, it does not appear in the NHS Inform list under the A-Z listing. Are you in the UK and what help have you had thus far from GP and/or dermatologist?
I am in the U.S. I have seen numerous doctors and dermatologists. I have tried both medical and natural remedies and I can get it to clear up somewhat. It comes and goes as if in a cycle. But, I cannot completely get rid of it. The worst is in my left ear.
There is "something in it". I have these triangular shaped things that I shed. They seem to be all over with my head and upper back the worst. It seems to follow my nervous system. It just feels like "it" is taking over my body. I feel like I am the host and "it" feeds off of me but of course since I am the host it keeps me alive just enough to do its thing. I am completely miserable all the time and do not know what else to do. There are some remedies that basically dehydrate the things and kill them but a new batch always returns. I am at the end of my rope, not to mention my bipolar seems to act up more when this stuff is really active. Crazy isn't it. The closest I know is it seems to be Morgellons Disease which is still not recognised by the doctors or the CDC. I have contacted them as well and they gave me a link to skin diseases but not officially Morgellons. I find most helpful info on You Tube. I know I have a skin infection and something else I still can't put my finger on.
I do hope you can find a support group for the condition somewhere online around the global community, as others with the same/similar condition will understand what you are going through and the frustration of never being rid of it. Good luck with finding a community x
Nutrition is important especially when you are treating any health issue. Do your best to eat as healthy as you can.
Then you could give the following advice a try for supporting your overall system, liver health, and dealing with possible bacterial, viral or parasitic infections in an effort to possibly reduce the frequency of occurrences to allow your system to balance and your skin to heal:
*Drink plenty of filtered water. Adding fresh lemon/ lime is also cleansing.
*Vitamin C (1000-2000 mg/ daily) or to bowel tolerance. It is important for just about everything, but specifically for tissue health and repair.
*Vitamin E (400-800 IUs/ daily) natural mixed tocopherols (d-, not dl-)
*Zinc 50 mg/ daily
*Fish oil (Omega-3s/ daily)
*Vitamin D & K-2 combo/ daily). It helps with inflammation.
*B Complex formula/ daily -- (an activated, methyl form that is ready to be utilized by the body)
*Milk Thistle (1000-2000mg/ daily) for liver health
*NOW Candida Support Capsules/ daily. Follow directions. It is a combination of anti- (parasitic, viral, bacterial) herbs. I swear by them.
*Organic Black Seed Oil (1-2 tsp/ every 1-3 days). Make sure it is bottled in dark glass.
Unfortunately, the toxicity of everything we come in contact with on a daily basis keeps our bodies in an unbalanced state.
You may experience flu-like detox symptoms for a few days. But, they will lessen over time.
Trying to lessen the burdens on your body may at the very least reduce the number of outbreaks you have. But, it could help to increase your over all health, and hopefully make you feel better even if it doesn't completely ameliorate the skin issues. Skin issues are the hardest things to treat.
You may also want to investigate food sensitivities as a trigger or aggravating factor, as well. For people with a sensitivity, gluten from wheat, barley, and rye can cause some painful skin issues and other bodily damage. Dairy can be a problem, too.
These are suggestions, as I have no medical training. But, as a person with food allergies/sensitivities, skin issues and very little useful advice from doctors, I had no choice but to research and become my own doctor. This is similar to the protocol I follow. I still have skin issues, but they are much improved. Realistically, I feel that is the best result one can expect. It also leaves space for true surprise and delight should a better result be achieved.😊
I'm in the US, so all of the supplements are available on Amazon, Piping Rock, and Puritans Pride to name a few.
Jonathan Otto may be able to help. He has a lot of knowledge on healing naturally’unhealable’ sicknesses. I think Morgellons is a Bioweapon. Also, my YouTube friend, Weeping Willow can help. I have numerous protocols that can help, but I have found no cure. These things inside us I think are bioweapons. These things are literally sucking the life out of me.
Hi Aken, have you heard of Dr Ginger Savely in the US? She is an expert on Morgellons disease which is often associated with the Bartenella infection, a co variant of Lyme's Disease. Have you got any further since your post?
No, I have not, but have done massive research on it and have whipped up some of my own natural concoctions that really do work. I am better, but not there yet. I have these flare ups related to my bipolar. When I am manic. I will check her out!
That sounds so awful n probably feels so much worse. I feel for you. I do hope your situation is much better now or at least bearable.
I cannot say I ever was in quite such a painful position like you describe with these Morgellons-like challenges. I had to battle with a serious skin disease; sarcoidosis; due to an auto-immune situation but I dealt with that succesfully; the natural way; n that was a very long time ago.
Anyway the reason why I write this is the fact that 4 to 5 years ago I saw a video of a lady documenting a far-out parasitic bodycleanse procedure. She took a series of purplish soaks in her bathtub and freakishly enough the floor of her bath tub was covered with all sorts of insect-like parts that could have only come out of her body. A medical professional would probably laugh me out of his office but I have a feeling this is based on serious stuff. We accumulate the most crazy compounds in our bodies; dead, living, organic, even in-organic; that seem to wreak havok with certain people in the community. Why it's such a horror for certain people and not for others I don't know n I don't think official statements concerning the origins of Morgellons have ever been made or what their place in the human body is.
Very recently to my surprise a close associate of mine happened to have the material this lady was using in her bath tub. They're called "Condy's Crystals" and the chemical name is Potassium Permanganate; a purple salt-like material that indeed has been used for various skinconditions in a very diluted form but to my knowledge has never been advocated in this extreme way.
These last days I have been searching for this video where this lady demonstrates the procedures of the "PP soaks" but I; unfortunately; have not been succesful in finding much more on it yet. If I find sufficient information on this cleanse I could forward it to you n this community. I will do the "PP soak" myself eventhough I do not have an unpleasant or life-treathening skin condition as of now. The idea of getting rid of these weirdishly strange parasitic lifeforms would seem to be so worth it.
Hopefully I'm telling you nothing new but if so this might be of any help to you or others who suffer so much providing we will be able to retrieve more indepth information on how this method works safely.
Then you do t got what were talkin about cause this dont got Nothing to do with bi0olar or stress or no mental bulls*it. But not finding anders is STRESSSIN ME OUT NOW I TELL YEAH WHAT GEEEEEZE😓
I 1st new of it in 2014 when I suffered bad with it. For me I'm certain it was related to tick bites. I did all I knew then, baths to help, total thorough cleaning and also ended up on some strong antibiotics due to cellulitis and staff on my skin. I didn't even try to discuss what I'm certain was mirgellons with those doctors at the time. I have battled it off and on since. I've currently found hidden mold in the home I live in and feel its adding to the problem now. I'm interested in anything you've learned.
I feel for you Antibiotics and mold are a factor in this shot I think i got it too and been suffering bad 13 years everything gone i love everyone abandoned me. Im trying to get to the bottom of this ,does your hair move by itself or do you yave thyroid issues now ? Weight gain ,headaches? Heres a picture of what I got goin on
Yes. Very similar. I have found that putting hydrogen peroxide on the sores reveals the things ANDin a dew days, kills it, sometimes I have to treat it 2 or 3 times with the hydrogen peroxide to get rid of all of it. If one little pustule is left, it will come back.
These things never go unless you extract ad leaves a hole a d it bleeds the range in size I've had tiny ones and had big ones and had one that looked like it split one that looked as if it bloomed they are slimy too
How the heck does nobody know wtf this is?!?!! Not cilia its not warts fungal creams dont work ,damn wth is it my innerds aint doin good I know this got something to so with it cause there in other places I've seen too if ya know what I mean 💩
I know me too and I'm pis*sed the fU*k off cause I had 12 years!! Nobody freakin knows?! Bulls*hit they just don't care! Ill it takes is microscope or a punch biopsy! Going to die from this!!
I thought so too because of how deep they are and all the blood that poor out the tiny hole. Its like they cane from the blood stream when those sensors went off in the body to the wound area to repair it these follow suit as well whether its a pimple or a scratch doesnt matter they are there look like a bulb that you see attached to hair shafts except not attached to a hair shaft yet, ive seen tiniest of hair in some sometimes.... Im goin nuts i still dont get answers to all i got is speculations. And what i seeand go thru. Now i got other symptoms that are mind blowing and also altering my body I cant take it no way to live .
Dors noone see the bog one in my picture?? There is something inside that one!!!! Looks like the talking plant off that movie little shop of horrors !!! Fu*k!!!! Im screwed
Mold yep !! Oh God this is probably an aspergillus infection of some kind i had black mold everywhere man baddd!!! 20,000 in my home and i shoulda burned it instead of getting mold out im still suffering and where the hell would a mold doctor be at and what they called?
Hello... I sooo feel your pain. I developed very similar condition 10 years ago. I can't get any help. The pain is intense. It covers my whole body (inside and out). Same triangle shed... Also sharp splinter like things protrude from my skin and tear up me and everything else. Mine used to come in cycles... Now it is nonstop all day...every day. I now also have black triangles, white balls that come out of my skin and feel like glass when they r not out. The pain is intense ALWAYS. After years of research I believe it may be part of a severe fungal infection that went bloodborne and or C-Auris. Together they have destroyed my system and now completely taken over. I can't get any doctors to even consider it as being more than dry skin, or contact dermatitis, or similar non serious conditions. This will kill me soon if someone doesn't figure it out. Nothing helps. I can't touch any part of myself with another part of myself without having swelling, bleeding, burning, and soars develope instantly . This sucks. I'm sorry I can't give much help... But I do suffer with u. Please keep me updated if u get any results. I'll do the same.
Did you have weight gain and possibly did you have gall bladder issues,liver issues , I also experiencing uterus issues and my hair on my head moves by itself alot I know its weird tell me something I don't know but it does im dieing
Ive had mrsa and Candidiasis (thrush)almost died from it cause doctors wouldnt help yeah help with thrush they didnt know what was wrong!! Kept feeding me antibiotics to get me out if there face! Antibiotics feeds the thrush !! And probably more than likely caused the thrush!;
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HELP!! Can not stop scratching!!
Acne
Rash,sticky skin,and perennial abscess
Skin too sensitive for bra
