Anyone in the north of Scotland dealing with MSA?

[g2gem]

Hi there, my Dad has MSA and I've spent hours on here reading about peoples experiences. In a way it is hard that people have such a varied experience of it as it's unpredictable what is going to happen next. I'd love to connect with people, especially if there is anyone in Scotland with family members battling with MSA? Many thanks, G

[Teresa5]

I only live in Suffolk not Scotland but if you ever need to talk I am here x

[g2gem in reply to Teresa5]

Many thanks, Gemma

[Yanno]

Hello G. Sorry again, we live in Worcestershire! Welcome to the community albeit sorry you have to be here. I think the one thing I've learned from all the support we've had over the last few years is..enjoy every day; never put off to tomorrow what you can do today as you never know what's around the corner. Take care, Ian

[g2gem in reply to Yanno]

Thank you very much, Gemma

[Rankin63]

I live in Aberdeen and have MSA .I was ďiagnosed in 2015 and so far am progressing slowly with balance being my main problem.

There is a support group held in Inverurie on OCTOBER 4th and family members or client themselves are welcome to attend.

Katie Rigg is the nurse and you just need to let her know that you are attending. MSA trust have a website which is very good.

[g2gem in reply to Rankin63]

Many thanks for your reply. I will mention the support group to my parents. They have found they have got a lot of great support from the Parkinson’s nurse, Gemma

[Nicky_Shaw]

Hi G,

I've just discovered this forum, a good place to share and support each other. It can feel quite lonely at times since MSA isn't very well known. I'm sorry to hear about your Dad. My Mum has MSA and while my parents live in South Yorkshire I live in Glasgow. Where in Scotland are you based? It's difficult being so far away and feeling quite helpless sometimes. I'm happy to connect if you need someone to talk to.

Nicky

[FredaE]

We have just come back from a holiday in Northern Scotland .Wonderful scenery and people

[Rocky0512]

Hi my husband has MSA . We live in Glasgow . We attend the MSA trust meetings in Glasgow which are run by specialist nurse Katie Rigg . I don’t know if you are a member of MSA trust but we find Katie really helpful and knowledgeable which is quite rare with this rotten disease .

Take Care C.