Estrogen Cream: My physician put me on... - Multiple System A...

Multiple System Atrophy Trust

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Estrogen Cream

SaltyFlorist profile image
12 Replies

My physician put me on estrogen vaginal cream in attempt to decrease my UTI frequency. It’s been 3 1/2 weeks and I have had 3 UTI’s in that time.

I go off of antibiotics and 36 hours later another UTI develops. I feel like the cream is actually making it worse but am hopeful that this is a temporary side effect.

Wondering if anyone else has had experience with this.

Thank you.

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SaltyFlorist profile image
SaltyFlorist
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12 Replies
Derkie54 profile image
Derkie54

Hello,

My wife spends about 18 hours a day in bed, she cannot use the toilet and has to be cleaned up and changed in bed.

So UTI's are always concern for us.

We use the following foam that seems to work well and is also used in the hospital.

Might be worth a try if you haven't already used it.

" Senset Skin Cleansing Foam " by Vernacare.

Take care

Derek

Honghua profile image
Honghua in reply toDerkie54

My husband had an in dwelling catheter and had bout after bout of UTIs.It was suggested by the urologist that he tried D Mannose.

I was very skeptical but it worked.

SaltyFlorist profile image
SaltyFlorist in reply toHonghua

Thank you! I have some here but haven’t tried it yet. I was hoping the oestrogen would help. I think I’ll begin taking it tonight. Does it upset his stomach?

Honghua profile image
Honghua in reply toSaltyFlorist

No he was fine taking it. After he started he never had another UTI!Was very skeptical about it but it really worked.

It's been given the go-ahead by NICE but currently not available on prescription. Or wasn't in the spring

Gill-C profile image
Gill-C in reply toSaltyFlorist

Prof Panicker who led the D Mannose research is a trustee of the MSA Trust. I had an appointment with him at Queen’s Square recently and he was very positive about the benefits of it.

SaltyFlorist profile image
SaltyFlorist in reply toGill-C

Thanks Gill,

I appreciate your comments. Great information . I bought some after reading a little about it on here. I was going to try one thing at a time so I would know what actually worked. That is too exhausting, I’m ready to try everything I can.

Sandy

Gill-C profile image
Gill-C in reply toSaltyFlorist

of course you are - it sounds really debilitating. Throw everything at it!!

SaltyFlorist profile image
SaltyFlorist in reply toDerkie54

Thank you! I haven’t heard of this product. It sounds great. Do you mind me asking how often your wife experiences UTI?

Derkie54 profile image
Derkie54 in reply toSaltyFlorist

Hello,

I don't mind at all, she's had 1 serious UTI in the last 12/18 months.

The D Mannose tablets sound good I might try them, at the moment I give her cranberry juice.

The Senset cream is really good at cleaning up after an incontinence episode ( sprayed onto a wet wipe ) and must help in preventing UTI's.

Take care

Derek

SaltyFlorist profile image
SaltyFlorist in reply toDerkie54

That’s incredible. I’m so glad I have asked these questions. I’ve had 9 UTI’s this year. I’d never heard of a product like this. Looking forward to trying it.

Thank you Derek!

Derkie54 profile image
Derkie54 in reply toSaltyFlorist

Hello,

Also, I don't know if you've come across this, the district nurse recommended the following cream for bed sores and it does seem to work really well.

Medi Derma-S

Total barrier cream by Medicareplus.

I tried to get it on prescription as it's quite expensive, but failed. So initially when I spot any redness I use Sudocrem antiseptic cream which is a lot cheaper and works ok as a first defence.

Take care

Derek

SaltyFlorist profile image
SaltyFlorist in reply toDerkie54

Thank you. I have not come across this. So far, it’s not a problem for me but that sounds like something important to have on hand.

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