CHC Funding Home Care vs Nursing Home - Multiple System A...

Multiple System Atrophy Trust

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CHC Funding Home Care vs Nursing Home

Purplestar2 profile image
2 Replies

Hello

We are just awaiting the final decision on the CHC funding whereby at the meeting the assessor said they would be recommending 50/50 funding for in home care.

My mums preference had always been to live at home for as long as she can manage but she lives alone and we are being constantly failed by care agencies - we are on our 6th providor in 1.5 years and they try and pull out as Mum is more hard work than their typical service users :(.

So whilst we should get an enhanced care package signed off at circa 5 hours spread through the day because it now includes all medication and some physio prompting sessions - her medication (6 times a day, 3 hours apart), I am concerned given how time sensitive the levadolpa is and how reliant she is on carers that we either wont find a new home care company or they will not deliver what they are commissioned to do!

With this in mind I am beginning to think about long term nursing home as a fall back and so that it's not a last minute crisis move with no thought!! My question is, how does this work funding wise and will they need to sign off the home? Will it be 50/50 funded still or only the circa £235 a week generic nursing amount?

I will need to sell or rent out her home to pay the nursing home fees so i also think it would be better if i move her next to me so that i can regularly visit. If i cannot stay at her home as i do now then visiting will be difficult as i also have a 2 year old with medical allergies which make staying in a hotel and eating out a nightmare. Plus the extra cost as i visit weeklt atm for a few days. The problem is that as i live in a more expensivd area the nursing homers here are significantly more expensive but my priority is her health including mental health and she really values seeing her grandchild and me and my husband! Therefore i need to be able to regularly visit!

Does anyone know more about the CHC funding of nursing homes that could provide any advice?

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Purplestar2
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Blueirises profile image
Blueirises

Please contact MSA Trust. I had really good advice when facing similar issues. Just a thought, having your Mum closer to you will be easier for you and she will benefit from more frequent contact with you and your family. Good wishes, it's tough.

Purplestar2 profile image
Purplestar2 in reply toBlueirises

Yes that’s my preference so that I can visit more and less disruption for my toddler, however, the nursing homes near me are £1600 a week for an Outstanding one (which she will need) and the ones near her are nearer £1100, as I live in a more expensive area! So I’d like to understand funding to see what that means too and whether it needs to be in her area. It’s all so confusing!

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