I think we are coming close to 7 weeks but Jon is like a different man!
He’s lost the ability to speak again and his motor skills are again much slower, mostly non existent but his observations are spot on, the best in 2 years!
Our holiday to Lincoln went incredibly well and we loved every minute!
We are now enjoying some time everyday just to be together and do something, however small.
My love for this man, his strength and will to live are unmeasurable despite the fact he has aged me 10+ years!
Give those loved ones and extra squish tonight and every night xxxx
My wonderful father and MSA
Another beautiful person taken by this horrible condition
Frequent falls when knee gives out
The battle lost!! 
Hospital Bed the next step? Other sleeping arrangements? May need to use a Hoist in near future.
