a further update: I think we are coming... - Multiple System A...

Multiple System Atrophy Trust

1,774 members1,425 posts

a further update

Kaye31 profile image
1 Reply

I think we are coming close to 7 weeks but Jon is like a different man!

He’s lost the ability to speak again and his motor skills are again much slower, mostly non existent but his observations are spot on, the best in 2 years!

Our holiday to Lincoln went incredibly well and we loved every minute!

We are now enjoying some time everyday just to be together and do something, however small.

My love for this man, his strength and will to live are unmeasurable despite the fact he has aged me 10+ years!

Give those loved ones and extra squish tonight and every night xxxx

Written by
Kaye31 profile image
Kaye31
To view profiles and participate in discussions please or .
1 Reply
Paul_and_Sue_Wood profile image
Paul_and_Sue_Wood

Kaye

Acceptance and resilience are a key to minimising the effects of this condition and enjoying time together any way you can is a must.

Watch changes like a hawk, especially infections and as soon at they appear get it sorted with medicines.

Good luck and enjoy.

Paul & Sue

Not what you're looking for?

You may also like...

A frustrating update

I haven't posted an update on mum for a while. She's spent the last 20 months being looked after in...
TK-67 profile image

Gone but never forgotten...

Well, here I am again as a carer for someone who suffered for 4 years since last swallowing and...
RhiMallorca profile image

A marriage of neurological issues

I have only just joined this very supportive group and if you don't object I would like to share my...
Madauntie profile image

update

I wanted to share the last 4 weeks with you. Jon developed the pneumonia and quickly followed...
Kaye31 profile image

My dad

I know that every case is different but my dad has been living with MSA for quite a few years but...
Becca9019 profile image

Moderation team

See all
MSATKirsten profile image
MSATKirstenAdministrator
JamesMSAT profile image
JamesMSATAdministrator
NicoleMSA profile image
NicoleMSAAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.