Emotions

[GranReRoLu]

This recent post could be my post, in fact I could have written it word for word. Only last night I tried to have a conversation about all of it and the response I got was silence. It’s breaking my heart as my husband was never like this. It’s not my fault that he has MSA. At a time when we should be even closer together, this is driving us apart. I just feel that I’m an unpaid carer, someone he has no emotional attachment to, even after 46 happy years of marriage.

[Derkie54]

Hello,

Yes, this seems to be fairly common. I used to ask and discuss with no response.

Now I mainly ask questions that require a yes or no answer. I do chat about things but it's a one way conversation these days. Sometimes it's only a nod or a shake of the head to a question.

I know what my wife likes and dislikes after ( like yourself ) 46 years and I'm hoping that if I was replaced by a stranger she would know the difference.

Keep smiling when you can, it's not easy is it, but we wouldn't want to change places.

Take care

Derek

[MF31]

I feel the same my husband is nearly non verbal and is very hard we have pictures for him to point too when he has choices of what he want's he tries to talk but all flows into gather.

[calebsmum]

Yes, exactly the same here, we have been happily married 42 years, my husband was a GP, we have a big family, but he is completely withdrawn, he has an iPad to communicate with but is very reluctant to use it, I feel so lonely. And when the carers come, they are focusing on him understandably, so my chatter often gets ignored and it makes me feel left out.

[GranReRoLu in reply to calebsmum]

Thanks to everyone for your comments. It does seem that we’re all in this together. With regards to voice banking and IPad my husband is reluctant to use that too. It’s getting harder to understand what he’s saying ( usually to tell me something that I’ve not done 😀) when he does decide to speak. 🥲 stay strong everyone. 😘