Advice please 😊: Good evening all, can... - Multiple System A...

Multiple System Atrophy Trust

1,774 members•1,425 posts

Advice please 😊

Whitefeather1 profile image
•3 Replies

Good evening all, can I ask please, with MSA can your symptoms plateau and you feel a bit stronger after having a pretty torrid few months? And has anyone experienced a feeling of dread during these bad times ? Caroline x

Written by
Whitefeather1 profile image
Whitefeather1
To view profiles and participate in discussions please or .
3 Replies
•
Yanno profile image
Yanno

Hello Caroline. I think one of the things that identifies MSA for us is the constant roller coaster that one seems to be on. No doubt about it you can plateau and you then feel stronger and that things aren't going quite so badly.

When you do dip down on that roller coaster, always look out for a UTI or other infection. With MSA it does seem to knowk you for six a little.

Good luck, Take care, Ian

Caroline.Yes symptoms do seem to plateau and stay constant and sometimes improve slightly, which when it happens is great, and enjoy.

But never be complacent and think it's going away keep protecting yourself from falls, other illnesses and infections because when they happen we find MSA does degrade a bit more.

Take care

Paul & Sue

Gill-C profile image
Gill-C

And a yes from me! I agree with the replies so far on the rollercoaster, but also with your second point on the feelings of dread. I believe it’s actually a quite common symptom of MSA - yet another trick your brain plays on you.

It seems to come in waves and I also feel it particularly badly first thing in the morning. probably not the best way of dealing with it, but I tend to try to get on with practical stuff and it eventually lifts. G x

Not what you're looking for?

You may also like...

Advice please

Hi, my husband has probable MSA and we'd like to know if anyone has found a solution for getting...
BlueBeachHut profile image
•

UTI -Advice please

I’ve got a terrible UTi . I’ve been given antibiotics and am drnking lots but wondered if you have...
Monkeyfeet1 profile image
•

advice

I currently wall surf around the house trying hands free Outside I use a Walker, accompanied....
Monkeyfeet1 profile image
•

help please

hi there, I would be very grateful for any help on what to do next. My partner had been having...
Staffy19 profile image
•

Urgent advice needed

Hi all. This is probably an unconventional post. My father was diagnosed with MSA and soon after...
Staffielover123 profile image
•

Moderation team

See all
MSATKirsten profile image
MSATKirstenAdministrator
JamesMSAT profile image
JamesMSATAdministrator
NicoleMSA profile image
NicoleMSAAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.