Dead legs

[Diver23]

Hi All

I was diagnosed with MSA-C in March 22, my question is has anyone experienced dead legs. I’m still able to work and drive at the moment but when I get home my right leg goes dead and I can’t walk so my wife has to try and help me from the car to a chair not easy a few times our neighbour has had to help. Have talked to the MSA nurse and she said it could be a trapped nerve.

[Paul_and_Sue_Wood]

Hi,My Sues start of the condition was numbing of her limbs and then "tingles". She described it as going dead as if the blood had been trapped and released. The tingles developed further to a painful skin feeling as if plunged in a bath of hot water.

It could also be a trapped nerve so get it checked out.

The condition affects many people in different ways and severity.

Paul & Sue

[ReverendBadger]

Any symptom could be due to something other than MSA so if it's bothering you or you think its not MSA related I would agree with Paul's advise to get it checked out.

That being said here's my 2p worth and personal experience;

March 2021 I see GP as have noticed fingers of left hand don't work properly, He checks many limb functions left and right and it's obvious the left leg is affected. I will the left leg, foot, or toes to move and response is slow, stiff, uncordinated and restricted. Right side OK.

GP says Parkinson's.

Over time the dysfunction of the left leg has got worse but at a relatively slow rate compared to other MSA symptoms apart from one day when I woke up and my foot and toes were effectively paralysed. Over a week that passed and I regained about 50% of what it was like before paralysis.

The left leg now is very resticted in possible movement, I walk with a very pronouned shuffle dragging the foot across the floor, Some days I cannot lift the foot off the floor at all and most days only an inch hence the need for help getting dressed,

In the last month I have got the "dead leg" effect you describe. If I sit down on a chair or in the car for more than an hour control of the leg is lost completely and it has to be manhandled to move it,

Standing upright and moving about with cane/zimmer/hanging on to funiture for 20-30 minutes usually brings back control or go to bed with a dead leg and wake up with the usual dysfunction.

Hope that helps

Regards,

Ken

[Diver23]

Thanks you all for your advice, my wife did take me to A&E and i ended up being admitted for a week with no real answers. Many Thanks Rob