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[Annie_77]

Good morning everyone ... I would like my father to join this group. he is the one who takes care of my mom every day ... but I'm not sure! I'm afraid you will be scared by reading our experiences!...i don t know...

Yesterday my mother was visited by an otolaryngologist, on the advice of her speech therapist, the otorine told her that she has a CHRONIC edema of the vocal cords. Due to various past causes (... in 1994 at the age of 40 she also underwent chemotherapy ...)

The otorine Seems to have understood the disease (msa) and knows that this is not what makes her not speak well ... but still trying to make a single infiltration in the vocal cords, trying to improve the edema could help her ... I m perplexed! She feels a weight in her throat, the otorine says that it is the phlegm that does not go down well, a little for the diseased muscles and a little for the edema of the vocal cords. I believe that in a while she will not speak anymore ... now she speaks very slowly and with a low volume , with difficulty.

a big hug from Italy to all of you! you are precious!!!!❤️❤️❤️❤️❤️

Viv (Annie)

[chester2107]

i think it is a good idea for himas he will be able to get advice and support from other people, my dad has passed now , but i found it really helpful , even though people don’t want to know how bad it can get , it is different for everyone

he can also chat to people

love elaine x

[Yanno]

Hello Viv. When Jackie was first diagnosed we didn't want to think about what was coming in the future we just wanted to be positive and live for the moment. We realised as things moved on that we needed advice and hearing the experiences of others was very useful.We are all on a journey and like any journey, we don't all stop at the same places. Just because one person has a particular symptom doesn't mean your mom will.

Your Dad will be welcome here and I'm sure will find much help and support.

Good luck, take care, Ian

[Annietutt]

Hi Annie. I think it all depends on your father’s state of mind. My husband doesn’t want to hear too much about what might be coming so I “drip feed” information that might be useful and let him know how other people cope with similar symptoms. I think he is grateful for the information but doesn’t want to get involved himself. Everyone is different though and you know your dad best. As someone else said, he may feel differently as time goes on.Good luck.