MSA

[Oliverwindsor]

Thank you everyone so much for your supportive comments, if I have to be honest I joined this forum as I had just about given up hope of someone to talk to about this. I hear what you are saying about help but it’s so very hard as we have been totally independent for our whole lives, when we talk about the past we both end up in tears, it just seems so very young, she is 56. First noticed something was wrong March 16 but obviously had no idea of what was to come. Anyway, I’ve gone on enough, thank you all again for your kind support.

[Hellebelle]

Hi Oliver,

I think most people using this forum will agree that MSA is very cruel and it is understandable that you feel so sad and angry about your wife being diagnosed at such a relatively young age. I know we mentioned trying to be positive but it's understandable that you grieve for what has been lost. I remember crying so much at the realisation that my lovely dad had been robbed of enjoying his hard earned retirement. All of his plans of travelling around Europe with my mum abandoned.

My dad was also very resistant to receiving help as he was very proud and independent. However, he eventually became a favourite with his carers and dad begrudgingly admitted that he quite liked their company! It also meant that my mum could have a bit of space and rest as the physical demands of assisting dad became too much for her. I do understand though how difficult this is to accept when you have been so used to being independent. Perhaps start off very gradually having help once a week just to test the water?

Maybe you aren't quite ready for this and just want to gain advice from this forum? Everyone is different.

The most important thing is that we are here and we do understand how awful this journey can be. It's just that it can be made easier knowing there is always someone you can talk to.

Sending you lots of love and strength.