Sadly I lost my lovely husband Alan Wednesday night. He had been in hospital for 6 weeks with Aspirational Pneumonia. Just when he was getting better he was taken to have a peg fitted but when he was laid flat he took a turn for the worse and it was decided a peg could not be fitted. More antibiotics followed with 'risk feeding' but as his swallow was gone it became obvious that the best thing for him was to try and get home to spend Christmas with family. Arrangements were being made for carers, community and palliative nurses when he took another dip and now at last his suffering is over.
I must say that this forum has been such a comfort to me. Reading other peoples posts and knowing that we were not alone. Getting hints and tips and advice and even a laugh at times has been so good. Thank you all very much.
I wish everyone on this journey a very Merry Christmas and a Happy New Year. Here's to 2021 being a better year for us all.
Love Jan
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Tusker1953
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Sending you my heartfelt condolences. I am so pleased that you have found some comfort in using this site. I sense from your post that there is a mixture of such sadness but also some relief because his suffering has ended. He is now at peace. You have looked after Alan with such love and care and he will have known and felt this. That is the most important thing.
Hi Jan so sorry for your loss , but at least he is at peace now , you did all you could for him , and he knows he was loved and cared for , sending love and hugs xxelaine
So sorry for your loss. As you say he is now free of this dreadful disease. Take time to grieve but remember to cherish yourself, you deserve it. God Bless x
So sorry to hear this Jan. it has been such a difficult time, but as others have said, you have really done everything you could to be his wife , friend and advocate. I am sorry that he didn’t get home, but his suffering is now past and you can remember all the good times you have had. Grief is different for us all, and you must do whatever helps you.
I am so sorry for your loss. My condolences to you and your family. Take comfort in knowing that your love, care and devotion extended your time together. You will both be in my prayers.
I'm so sorry to hear your sad news. It's little consolation, but at least he isn't struggling anymore. Much love to you and your family and if possible, remember the lovely times you had together.
I'm so sorry to hear this news. It seems to me that one can love and care for a person and know that they're not going to get better, but when they do die, it's still in a way, quite shocking. I hope you will take much comfort in knowing that you could not have loved or cared for your husband any more than you did.Heartfelt condolences.
My heart & prayers go out to you Jan. I am sorry for your loss as all have said, but knowing how loved Alan was by you and that he no longer suffers will see you through the dark days ahead. Cherish your memories as you reflect upon this holiday and express your grief.Hugs to you and your family.
I'm so sorry for your loss. I too will go thru this one day with my husband. I'm sure like myself, you cherished all the time you had with him. It's such a difficult road we travel, at the end it almost seems as much as we don't wish to loose them, we know that they are finally free of pain and this horrible disease. It's a horrible pain we all feel watching our loved ones go thru this. I hope you are well and remember the good times. Love to you and your family.
Thank you all so much for all your lovely messages, it is a great comfort to me and I am so grateful for them as I am sure like me you all feel very lonely at times. Andrashko you are so right when you say that we know that they are finally free of this horrible disease. So today we have news that stricter measures are now in place to protect us all from COVID so take care all who read this and enjoy Christmas wherever you may be. Love and best wishes
Hi my husband was diagnosed with MSA in 2016 prior to that he had an Atypical Parkinsons diagnosis. In hindsight I believe some symptoms appeared way back in 2007 but at the time they were not enough to send us off to the doctor. By 2015 friends were telling us we needed to go to the docs cos something was not right with him! The last 5 years have been a fairly rapid downhill slide. Best wishes. Jan
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Breathing/sleep issues 
MSA affected by Covid
Just want to say Hi.. 
help please - is this end stage MSA?
