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Multiple System Atrophy Trust

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My dear father and msa

Mahmoudd profile image
4 Replies

I’m new here thanks for this opportunity,my father was diagnosed with MSA 4 years ago and he losing his beautiful voice very fast, I love him so much, He always looking at me while I’m studying and I love it . I have an exam after 2 mounts I hope that I will do it ...

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Mahmoudd profile image
Mahmoudd
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4 Replies
Derkie54 profile image
Derkie54

Hello Mahmoud,

Sorry to hear about your father and welcome to this forum. I think you just have to accept these things and try and be as normal as you can. If my wife can't do something then I just accept it.

Different people have different issues but you will adjust and take it in your stride after a while. I'm sure you're doing fine, it's not an easy journey.

Mahmoudd profile image
Mahmoudd in reply toDerkie54

Hi derkei, thanks for these words, yes I’m trying to accept this and beside that I’m trying to explain to him that all the things isn’t important include the body power expect the brain, thank you so much .. I appreciate

Hellebelle profile image
Hellebelle

Hello Mahmoudd and welcome to the site. I am so sorry that your dad has MSA and that he is losing his voice. I was wondering if you had any help with this? We had some help for my dad from a Speech Therapist. It's a strange time I know at the moment with the coronavirus and its hard to make appointments with professionals. There is advice on the MSA trust website that you might find useful.

Spending time with your dad is the most precious thing you can give and I am sure he will appreciate that. Showing your love and being with him will mean more to him than anything.

You also have to look after yourself as it can be very emotionally draining. Please use this site to discuss your worries or ask questions as there will be lots of us who will be able to offer support as we understand what you are going through

Mahmoudd profile image
Mahmoudd in reply toHellebelle

Hi hellebelle and thank you for your words, as for his voice we try this and my father doesn’t like to continue with the therapist for reason that I don’t know, but I think he hadn’t feel comfortable and specially for the reason that he is no longer can walk, and his left hand doesn’t obey his order. Yes, spending time with him is a comfortable thing for me, I love him so much so sometimes I feel guilty that im not thinking about him but it’s fine .... thank you so much ...!

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