Dads voice: Hi all, Not looking for... - Multiple System A...

Multiple System Atrophy Trust

1,752 members1,404 posts

Dads voice

Katyjonesuk profile image
9 Replies

Hi all,

Not looking for advice - just need to share my sadness that my Dad is losing his voice so quickly, and I am sad that I can’t see him at the moment, and when I do see him again he won’t be able to make his voice heard.

I’m trying to reassure myself that as long as he is safe and the carers keep turning up then all is well (of course that is the most important ) - but I used to pop in 3 times a week and haven’t seen him to talk to for almost 3 weeks now I miss him

Take care everyone xx

Written by
Katyjonesuk profile image
Katyjonesuk
To view profiles and participate in discussions please or .
9 Replies
Rafaina profile image
Rafaina

So sorry to hear this Katy. Is there anyway you can record your dad over the phone or online?

Take care

Clare x

Katyjonesuk profile image
Katyjonesuk in reply toRafaina

I think we are past being able to record him now unfortunately but thanks for your suggestion xx

chester2107 profile image
chester2107

❤️❤️☹️

Katyjonesuk profile image
Katyjonesuk in reply tochester2107

❤️

Yeah it's just hard. We are required to keep letting go of our loved ones, with every development of their condition. And now the need to leave them in the hands of others.

I normally visit Dad 2 days a week, but thankfully the carers are helping with video calls. I've snuck in a couple of times to say hi when I've brought his shopping round. But don't know if I should really.

I think I've got used to Dad not speaking - it's exciting when he does manage a bit. I'm realising how precious each smile is that we have had from him. He's a legend. :)

Take care xx

Katyjonesuk profile image
Katyjonesuk in reply to

Oh thank you for the reply - let’s hope that our Dads stay safe through this horrible virus time

Take care x

Mahmoudd profile image
Mahmoudd

, my father also is losing his voice...

I hope that you and him will be strong

Katyjonesuk profile image
Katyjonesuk in reply toMahmoudd

It is a cruel disease for sure

Take care x

Try and get the home to FaceTime you or maybe send u a video I know a few homes are doing this my dad is in end of life care now so luckily my mum can still see him it’s hard when there voice goes hopefully this will be gone and we can get back to our family members

Not what you're looking for?

You may also like...

recent hospitalization

My husband gets a lot of mucus in his throat . Yesterday he began choking and although he was...
Andrashko profile image

Gone but never forgotten...

Well, here I am again as a carer for someone who suffered for 4 years since last swallowing and...
RhiMallorca profile image

heartbroken

I haven't posted on here for a while but I'm beside myself with worry, my darling Husband was...
laineyash profile image

DS1500 & PIP

My dad has MSA and he has really deteriorated in the last 6 months. He applied for, and was granted...

Dad is left alone on a ward, unable to communicate and we can't accompany him and we've been told no visits allowed. HELP please

I'm in need of some help please. My dad has msa-c and was blue lighted to a&e in the early hours...
Daniellep1 profile image

Moderation team

See all
NicoleMSA profile image
NicoleMSAAdministrator
JamesMSAT profile image
JamesMSATAdministrator
MSAAndy profile image
MSAAndyAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.