Dads voice: Hi all, Not looking for... - Multiple System A...

Multiple System Atrophy Trust

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Dads voice

Katyjonesuk profile image
9 Replies

Hi all,

Not looking for advice - just need to share my sadness that my Dad is losing his voice so quickly, and I am sad that I can’t see him at the moment, and when I do see him again he won’t be able to make his voice heard.

I’m trying to reassure myself that as long as he is safe and the carers keep turning up then all is well (of course that is the most important ) - but I used to pop in 3 times a week and haven’t seen him to talk to for almost 3 weeks now I miss him

Take care everyone xx

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Katyjonesuk profile image
Katyjonesuk
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9 Replies
Rafaina profile image
Rafaina

So sorry to hear this Katy. Is there anyway you can record your dad over the phone or online?

Take care

Clare x

Katyjonesuk profile image
Katyjonesuk in reply toRafaina

I think we are past being able to record him now unfortunately but thanks for your suggestion xx

chester2107 profile image
chester2107

❤️❤️☹️

Katyjonesuk profile image
Katyjonesuk in reply tochester2107

❤️

Yeah it's just hard. We are required to keep letting go of our loved ones, with every development of their condition. And now the need to leave them in the hands of others.

I normally visit Dad 2 days a week, but thankfully the carers are helping with video calls. I've snuck in a couple of times to say hi when I've brought his shopping round. But don't know if I should really.

I think I've got used to Dad not speaking - it's exciting when he does manage a bit. I'm realising how precious each smile is that we have had from him. He's a legend. :)

Take care xx

Katyjonesuk profile image
Katyjonesuk in reply to

Oh thank you for the reply - let’s hope that our Dads stay safe through this horrible virus time

Take care x

Mahmoudd profile image
Mahmoudd

, my father also is losing his voice...

I hope that you and him will be strong

Katyjonesuk profile image
Katyjonesuk in reply toMahmoudd

It is a cruel disease for sure

Take care x

Try and get the home to FaceTime you or maybe send u a video I know a few homes are doing this my dad is in end of life care now so luckily my mum can still see him it’s hard when there voice goes hopefully this will be gone and we can get back to our family members

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