After my first post following my mum's re-diagnosis. our lives continue to be traumatic. Firstly thank you to everyone who responded, it really did help to know there were other families out there who understood.
Since then we struggled with the nursing home making any attempts to understand mum's condition, she continued to suffer and experienced extreme Sleep REM problems, daytime hallucinations and challenging behaviour. After one fall we flagged to the home our concerns and unfortunately a week later mum fell again and this time broke her hip, resulting in a hospital stay and surgery. On a good note this has opened up access to a new set of experts and finally her drug regime has been overhauled and we have seen some improvement, however some of the more challenging behaviour is creeping in again.
We have though made the decision for mum to not return to the home due to their lack of care and understanding. We've found another that we hope can meet her now very complex needs - she's also now experiencing some blood pressure problems too and we have the challenge of getting her mobile again.
We're all feeling bruised by the experience - that we got it wrong for mum and she ended up in hospital - her worse nightmare. We're also finding we're having to pay a premium to get the right care, we're keeping everything crossed that due to the complexity we will get some funding. Far from fair though.
Has anyone else experienced the behaviour challenge - mum gets very sad, then angry (sometimes verging on violent and not like her at all) and then quite rude, she's been mocking the nursing staff today?
Tx
Carers
Update on Maggie. 
heartbroken
Mum newly diagnosed with MSA-P and we are all struggling
