MSA DILEMMA

[Dchovan]

Diagnosis of "pd May of 2015 then in October 2017 the diagnosis was changed to MSA. My current neurologist is slowly reducing my meds- which I Am in favor of'.i am trying the thiamin protocol, I’m confused because I’m not feeling any real benefit from it..I’m currently taking 3injections IM 50mgper week,after trying 25 and 50 mg and oral therapy in ranges of

500 tô 2000. I’m kinda at a loss as to what todo next. I would be very appreciative of any suggestions.

Thank you,

Diane C

[Yanno]

Hello Diane

I remember your post of last year - I seem to recall that you are in USA. Did you ever contact the MSA Trust by email, they may be able to comment.

I have never heard if the Thiamin protocol and sorry can’t help.

Good luck, take care, Ian

[Rocky0512]

Hi

My husband diagnosed MSA last year . No treatment offered to him . What , if any , are benefits of thiamin ?

Regards

Carole

[chester2107 in reply to Rocky0512]

hi , my dad has it and they only offered him a drug that helps parkinson’s , but he said it wasn’t helping , yes contact the trust for advice

take care xx