My thoughts are with you

[Nichod100]

I’m very sorry for your loss , my husband was diagnosed with MSA -C two weeks before Christmas . I am very lucky as we have only just started on this road and obviously you have come to the end of yours . My thoughts are with you at this sad time x

[Yanno]

Hello Nicky. Welcome to this group albeit it's always sad that you have to be here at all. I've read your posts on the Ataxia community group and realise the journey you both have been on. Richard is about the same age as my wife, Jackie and so I understand so well what you both are going through.

Because you are so new to MSA, you may not have heard of the MSA Trust (msatrust.org.uk). Do spend time on their web site as there's so much information about issues surrounding MSA there. The Trust have a number of specialist nurses who have been a valuable help to so many with the condition. Depending on where you live, one of the nurses will be available to you for help and advice over the phone (or email). If you can get to a local support group I am sure you will find this useful as well.

You made a comment that you've "only just started on this road". It's a road so many have travelled but please remember that not everyone stops at the same places on the way or follow exactly the same route. Your journey will be your own but hopefully through this group you will find help, advice or support if you need it.

Take care, Ian

[Nichod100 in reply to Yanno]

Thank you I have already joined the MSA Trust . I did this before the definite diagnosis as I had done some research and thought I had worked it out for myself . I couldn’t agree more that everyone’s journey seems unique and I promise you we stay positive and cheerful ( most of the time )