MSA people who live with this

[greenvelvet]

hi looking to talk with people who are connected with MSA

[Yanno]

Hello Greenvelvet. It's good to have to have you in the community albeit as always its sad you need to be here. Hopefully you will find this group willing to listen and help where they can. If you have something on your mind or a question, why not raise it here and you will see the willingness of so many members to help.

Take care, Ian

[greenvelvet in reply to Yanno]

thankyou so much Ian I feel so alone as no one can help very much my husband has had msa for 2year now well that is when he was diagnosed but he was suffering for a long time before that

[Yanno in reply to greenvelvet]

Hello again Greenvelvet

I so understand your feeling of being alone, MSA is such a horrible condition one never knows what will happen next.

Have you spoken to the MSA Trust? Their nurses can give so much help, also there may be a support group close to where you live. We are trying for instance to get a group meeting regularly for the Gloucestershire/ Worcestershire/ Herefordshire area.

Please shout out loud in this forum if you need advice as well. There are so many people here going through just the same emotions as you.

Take care, Ian

[LynneK68]

Welcome greenvelvet!!

There some very knowledgeable people on here that either have MSA or have lived through it, who are quite happy to share their story. Hope you find what you’re looking for

Regards

Lynne x

[greenvelvet in reply to LynneK68]

thankyou Lynne

[Teresa5]

I have m s a and live with it

[Diane831]

Hi there. Welcome. Where about do you live? We may be able to point you towards people who are in a similar area. I hope you find the support you are looking for from us all.

Diane

[greenvelvet in reply to Diane831]

hi diane I live in high Wycombe bucks

[Diane831 in reply to greenvelvet]

There is a support group run by Freda which may be in your area.

It is on the Herts/ Beds/Bucks border which may be miles from you of course. It is ‘down south’ and my geography stops south of Manchester!!!! But at least you can get the full support from the MSA Trust , do use the help and support they offer by phone or email.

Best wishes

Diane

[Suze81]

Hi, like the others have said, the forum is very supportive. I’m new to it and joined as my Mam has MSA and I wanted to read and share information about it and support those who are affected.

[greenvelvet in reply to Suze81]

yes Suze same as me my husband has it

[Hellebelle]

Hi Geenvelvet welcome! I hope you find the support you need here. There are so many knowledgeable people here who know what you are going through if you are a carer or if you have the condition.

[greenvelvet in reply to Hellebelle]

thankyou

[greenvelvet]

thankyou

[1246carol]

Hi, I do feel for you, as like you I am a carer for my husband. John was diagnosed nearly 2 years ago, but had a lot of odd symptoms several years before. He has become completely dependent on me for washing, toileting, and moving from one room to another. I can only suggest that you get as much help as possible and try to take one day at a time and also try and take care of yourself, although not easy. Carol

[greenvelvet]

thankyou carol yes its not easy looking after him and trying to work but my daughter is very good so I do get some help I hope you do do you live in the south of England thanks angie

[chester2107]

Hi Angie - my dad has msa -(diagnosed 3 years ago ) he is 82 and my mum looks after him but does have carers in and I go down and help when I can - they live in Henley on Thames - I am trying to find a support group that I could attend , maybe with dad

Elaine x