My Mum

[gillrad]

My Mum passed away 26.09.17. She had probably had 6 years of declining health prior to passing. She had a PD diagnosis abt 2 years prior to passing and was treated with PD medication. Her mobility rapidly declined during the last 2 years of her life. About 12 weeks prior to passing she had a fall and was taken to hospital. Following this she stopped any mobility. During this time swallowing issues worsened. 6 weeks prior to passing she was diagnosed with MSA. About 3 weeks prior to passing she was fast tracked to a local nursing home. Until this diagnosis she had spent what felt to me like at least 2-3 years not doing anything much due to her health issues. The answer was we’ll do such and such when we know what the diagnosis is or we want a diagnosis first of all. My Dad was her primary carer. They only wanted family to help. I couldn’t help much due to my own health issues. I hope there is a breakthrough and early diagnosis and treatment of MSA becomes possible.

[Marie_14]

Gill so does anyone who loses a loved one to it. It is awful that she only had a diagnosis just weeks before she died. I am so sorry.

I lost my husband at the end of February. Not easy any of this. The same thing happened to my husband. He was told he had PSP with signs of MSA. Just weeks before he died it was changed to MSA. I still think the original diagnosis was the correct one. Anyway whatever it was it took him. So cruel isn't it?

Take care of yourself and your Dad. He must be worn out and so lost?

Marie x

[Yanno]

Hello Gill. your post so well exemplifies why more research is needed into these dreadful conditions. We were lucky that Jackie had a relatively quick diagnosis (18 months after real symptoms started) and she is fairly typical MSA-C. So often there seems to a genuine inability to diagnose between a number of dreadful conditions. Hopefully when more research is do into them all we will start to get more definite diagnosis and more importanly cures.

I hope your Dad is bearing up, he must feel so alone at times.

Take care, Ian