Hi all, my name is Deb and I live in Australia.
I live with 2 daughters 25 and 23 and my grand daughter 19 months delightful! I also have a son who is nearly 21 but he does not live at home. I was diagnosed with MSA-C when I was 48 and I am now 52. I have not worked for nearly 4 years. I use a rollator to walk outside the home but nothing at home because I bounce off walls. I'm progressing slowly ( thankfully) but I don't go out very often because of my speech and incontinence. I have not (as yet) had hospitalisation or medical intervention. I'm scared for what the future holds but have a positive outlook. I have the book sent from the trust and I take it to all appointments. It is very rare, no-one knows about it, including doctors, which is because it's so rare.
That is me, I hope you are all well, as well as possible