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MS Society

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MS Spouse

I'm writing this because I was looking for a community in which I'd be able to share feelings of being in love with someone who has MS and I'm hoping this is a...

I'm writing this because I was looking for a community in which I'd be able to s...

•2 months ago

MS, heat and water weight?

Hello, does anyone else gain water/regular weight during the summer? Because, as we all know heat sucks and takes us down physically why not attack the...

Hello, does anyone else gain water/regular weight during the summer? Because, as...

•4 months ago

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Swollen feet,.

Swollen feet and heavy legs can make walking much worse,. I already take medication to help control a weak bladder, if i am given water tables, would they...

Swollen feet and heavy legs can make walking much worse,. I already take medicat...

westwalessupport

•5 months ago

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COME AND VISIT

I have MS and other things. I have created a group where i show my daily struggles. Good days, bad days, the ugly and the good. We show techniques on how...

I have MS and other things. I have created a group where i show my daily strugg...

•6 months ago

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Diagnosing

Has anyone been diagnosed with MS but when they did blood tests there was no inflammation in the blood?

Has anyone been diagnosed with MS but when they did blood tests there was no inf...

ChronicJazzHands

•8 months ago

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Irishgirl

My genetic makeup is still being developed. I thought I was active in sports and life until personal challenges came. Very slowly you feel some...

My genetic makeup is still being developed. I thought I was active in sports and...

•8 months ago

Irishgirl

My genetic makeup is still being developed. I thought I was active in sports and life until personal challenges came. Very slowly you feel some...

My genetic makeup is still being developed. I thought I was active in sports and...

•8 months ago

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advice

Hi All a couple of years ago I went to hospital with stroke like symptoms but a consultant within 30 seconds said I had FND trouble is now it is on my notes...

Hi All a couple of years ago I went to hospital with stroke like symptoms but a ...

•10 months ago

wife with advanced M.S

Do not go gentle into that good night but rage, rage against the dying of the light. Dylan Thomas

Do not go gentle into that good night but rage, rage against the dying of the li...

Dustytryingmybest

•11 months ago

MS caregiver

Hi, i’m the daughter of an MS patient, it’s been very difficult for me especially with it progressing to deal and accept the changes. I hate seeing her suffer....

Hi, i’m the daughter of an MS patient, it’s been very difficult for me especiall...

•1 year ago

How many people had a diagnosis of fribrmalagia before later being diagnosed with ms?

Hiya, I am waiting on doctors and test results. I've lived with fibromyalgia for years but in the last year and a half I've had two patches of being really...

Hiya, I am waiting on doctors and test results. I've lived with fibromyalgia for...

•1 year ago

New Comer

Hi, I am reaching out to others because over the years I’ve had unusual and varied symptoms that I just cannot seem to figure out. Most of my symptoms are...

Hi, I am reaching out to others because over the years I’ve had unusual and va...

•1 year ago

Diagnostic scan for MS

hi, my 46 year old son has been referred for an MRI but it’s taking ages. My local hospital has a private, self-refer MRI unit & I want to make an appointment....

hi, my 46 year old son has been referred for an MRI but it’s taking ages. My loc...

•1 year ago

I miss People..

Today I was at a store and I saw two coworkers giggling over a snack that they were excited to come in. A new flavor or something. Then one said to the other...

Today I was at a store and I saw two coworkers giggling over a snack that they w...

•1 year ago

First Ocrevus Infusion <3

Hi all! Just came to update that my partner got his first infusion yesterday! He was there for 6 long hours, but it went better than expected. The place he...

Hi all! Just came to update that my partner got his first infusion yesterday! ...

•1 year ago

coffee

https://www.mymsteam.com/resources/caffeine-and-multiple-sclerosis I found this interesting and thought I’d share 🙂

https://www.mymsteam.com/resources/caffeine-and-multiple-sclerosis I found this...

•1 year ago

Ocrevus

Hi! 👋 This'll be my second post, but I'm still very new here. Found out today that my partner will be getting his first infusion of Ocrevus on the first of...

Hi! 👋 This'll be my second post, but I'm still very new here. Found out toda...

•1 year ago

Hi There <3

Hi. My name is Ari. I'm 21 years old, and I live in Arizona with my boyfriend. He was diagnosed with Multiple Sclerosis at 21, in October of 2022. However,...

Hi. My name is Ari. I'm 21 years old, and I live in Arizona with my boyfriend....

•1 year ago

sense of smell

hi everyone. I was wondering if anyone had a sensitivity to smells. I was talking to my cousin (who also has ms) and she was telling me of her dog getting into...

hi everyone. I was wondering if anyone had a sensitivity to smells. I was talkin...

•1 year ago

Ms fatigue and family occasions

I am 83 and have progressive MS. Like us all, I have exhausting fatigue. Our kids live overseas so when they come to see us, it is intense. We have three...

I am 83 and have progressive MS. Like us all, I have exhausting fatigue. Our ...

•2 years ago

Pen Pal

Has anyone ever been a pen pal? Better yet an unexpected one? i.e didn't know that someone was going to write you. How do you start a pen pal letter to someone...

Has anyone ever been a pen pal? Better yet an unexpected one? i.e didn't know th...

•2 years ago

Bladder retention

diagnosed with MS 25 years ago and don’t really have any ongoing symptoms. Have kept fairly active hillwalking and running until 5 years ago when diagnosed...

diagnosed with MS 25 years ago and don’t really have any ongoing symptoms. Have...

•2 years ago

MS exercise issues

Hi my more active friends! I have a question. I need to be more active in hopes that will help me with my insomnia and frankly just need to. I love the pool...

Hi my more active friends! I have a question. I need to be more active in hopes...

•2 years ago

good morning

stay postive because ms is a roller coaster ride. Don't give up because god is on your side. amen😇

stay postive because ms is a roller coaster ride. Don't give up because god is o...

•2 years ago

Humidity

My symptoms are much worse with high humidity. Oddly, this is even when we have run the dehumidifier indoors. Does any one else find this? I seem to...

My symptoms are much worse with high humidity. Oddly, this is even when we have...

•2 years ago

MS's Stupid Hilarity

I am often reminded of MS's "stupid hilarity" I was supposed to go to a friends son's baptism when I woke up rather sick. If I woke up unable to walk I would...

I am often reminded of MS's "stupid hilarity" I was supposed to go to a friends ...

•2 years ago

I missed my anniversary/celebration

I was at a funeral (neither here nor there) when I suddenly look at my sisters and say: Me: "Wait! What's today.. The 14th?" Sis:(confused) "Yes" Me: "Dang...

I was at a funeral (neither here nor there) when I suddenly look at my sisters a...

•2 years ago

Cold sores and immuno surppresed

Hello, I just got my first ever cold sores. I also just have my Ocrevus therapy barely a month ago so my immunity is shot! I have never been one for essential...

Hello, I just got my first ever cold sores. I also just have my Ocrevus therapy ...

•2 years ago

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One battle at a time!!!

Hello all fellow m.s. survivors, I am a 46yr old single woman . My ex couldn't cope with the diagnosis and 4 months in hospital, he assumed it would make me...

Hello all fellow m.s. survivors, I am a 46yr old single woman . My ex couldn't ...

•2 years ago

Can I have MS with blood brain barrier intact?

Blurred vision led to MR showing MS lesions n nran and spine though BBB intact; spinal fluid had IgG and bands, evkdvpotential test showed delayed response;...

Blurred vision led to MR showing MS lesions n nran and spine though BBB intact; ...

•2 years ago

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