Hi,
I am reaching out to others because over the years I’ve had unusual and varied symptoms that I just cannot seem to figure out. Most of my symptoms are painless,;fatigue, vertigo and tingling of my hands, but the times I do have pain, it is excruciating. Recently after a hike in the mountains, I had severe pain in my right back, above my kidneys. I chalked it up to pulling a muscle while hiking or just overdoing it. This pain was severe. It hurt constantly, as well as to turn to my right, but not to touch and felt deep within. I waited a few days and did some energy work; qigong. My pain felt somewhat better, then a few days later the pain transitioned to my left side! I knew this was no longer a muscle issue. Now it has returned to my right side. These unusual symptoms began to happen to me after I received a flu shot many years ago and have continued to escalated. The fist symptom was complete pain everywhere on my body, it hurt just to put a tee shirt on my skin, it felt like it was on fire. As I’ve gotten older and the toll these painful symptoms take it has become depressing and hard to just write it off and get up and go. I find speaking to doctors very difficult, when I asked to be tested for HH at a young age the doctor laughed in my face. When I did finally convince a doctor to test me it was confirmed I have HH, which I manage. So any advice or others who have endured a similar experience I would like to hear from. Many thanks!
