My genetic makeup is still being developed. I thought I was active in sports and life until personal challenges came. Very slowly you feel some unusual,annoying symptoms down left side of leg and feet. As it continues I am going to primary doctor in Phila hospital. Physical and emotional changes continue with many visits until one professional sport doctor said it is coming from your spine.
Option 1- pain or PT(pain) since it was many years of an underlying condition. 2. Even the best only looked at lumbar / injection . As I then started upper body weakness I get scared but in denial.
All of spine had MRI’S and showed herniated discs/3 ——Cervical stenosis. After surgery I think I am done and back to work-NO. As I continue my journey to Florida with family I am very aware of something much worse. No doctor or family member can understand what fear and frustration you have. I felt alone, in my 50’s with no understanding. Starts in 2000/ surgery in 2010 and finally after many doctors I am told in 2015 you have primary MS.! I am literally still NUMB. You were misguided and we see more today than back then????? I saw neuro-surgeon and neurologists who said I can’t be 100% of MS. Finally after pandemic I meet a MS-Specialist. It is MS/myelopathy and Complicated? My trust in the health care system is below ⬇️ 0. 2021 another cervical surgery and here I am in a nursing facility in a wheelchair. Much research/ good ms speak/ physical therapy lots of sadness. Wholistic is what I need but no team approach unless you are wealthy. I am still learning, my own advocate and still uncertain. Physical/Emotional support is important. Thanks 🙏
