I would just like to ask you all if anyone amongst the community has a history of hyperprolactinaemia. When I was 28 years old I was diagnosed with a benign pituitary tumour which caused my prolactin level to run out of control to ten times the normal perameters. At that time I was told it was a rare condition and I was just unlucky. De ja vu!
I was treated for more than twenty years with bromocriptine which controlled the condition and in that time my sister acquired the same problem and received the same treatment.
I have recently read that prolactin production is high up on the pathway which includes JAK2 function and I can't help but think there has to be a connection with my two "unlucky" acquisitions of high prolactin and polycythaemia vera. Has anyone else had a similar experience?