Polycythaemia ruby vera & covid vaccine

[Jrc2019]

Hi I have Polycythaemia rubra Vera just on aspirin at the moment platelets around 1000 all the time. I have been told that I am class 6 for the vaccine so will be one of the last to have it can anyone tell me if this is correct . Oh I am 45 years old.

Reply

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[Dazakella2010]

Hi.... having a mpn puts you in category 4.... you should of had your vaccine or be having it by the middle of February.

[Jrc2019 in reply to Dazakella2010]

Thanks for the reply!! I did think that was just wanted to clarify before I made a fool of myself 😀

[Dazakella2010 in reply to Jrc2019]

No worries at all.... I hope you get this sorted.

[Maisie10]

Hello. I have the same as you although I am taking Hydroxycarbamide . I am booked in for Saturday for my vaccine. I think you also should be in this category. Maybe give your doctor or consultant a call. Take care x

[mark382]

I sent Blood Cancer UK and cut and pasted relevant section to GP. Within an hour they had classed me as Clinically Extremely Vulnerable and updated Welsh government and received shielding letter a week ago. Having vaccine tomorrow.

[Ellafea]

Hi, I'm still waiting to be offered the covid vaccine. I have Polycythaemia Rubra Vera (JAk2) still waiting , but my doctor told me I probably won't be a priority as I'm 27 so not an at risk age category... Fingers crossed it's soon! 🤞🤞

[amhann in reply to Ellafea]

Hello Ellafea - it makes me SO angry when I hear younger MPNers are being told they are not priority for the vaccine - ALL MPNers should be in group 4 - please check the info on MPNvoice on eligibility for the vaccine, also the blood cancer U.K. site - you should be in group 4!!! Try ringing the 119 number, give them that info + see if they will book you - good luck. Anne-Marie.

[Ellafea in reply to amhann]

Thank you, totally appreciate this feedback. I'll definitely look into this!

[amhann]

Hello jrc - Soz, got muddled who’d posted - I replied to Elafea below + wanted to say the same to you - you should be in group 4!! Anne-Marie.

[Kari1961]

I have PV on Hydroxy and aspirin and I'm also in group 6 (at risk 16 to 65-year-olds). My surgery has said that I should be getting mine within the next few weeks.

[Tico in reply to Kari1961]

Did you receive a shielding letter kari?

[Kari1961 in reply to Tico]

I did for the first lockdown, but not this one. I've just received a call from my surgery, my vaccine appointment is Monday 22nd Feb at 9am.

[Tico in reply to Kari1961]

Thats good. I had mine Wednesday after my Daughter booked it online, then the letter to book it,came yesterday anyway. Tina.x🤗

[NewBloom in reply to Kari1961]

Hi, I'm the same as yourself and in early 50's. Heamotolog consultant say I'm not required to sheild, GP said Heam needs to confirm but If come under this catorgory. I'm guessing I'll be group 6.

[Kari1961 in reply to NewBloom]

I can't fault my GP Surgery - They are really ploughing through this with great organisation. As I said before, on their system I was group 6 at risk, but I've got my vaccine appointment in just over a weeks time. Last week they also got my Jury Service request deferred until the end of the year - I was due to start it in March. My GP phoned me and it was sorted asap. I feel sorry for everyone who is experiencing difficulties... I didn't phone to ask to have my grouping reviewed, but if I wasn't called today for mine, I would have started to.

[Mazcd Partner MPNVoice]

Hi Jrc2019, I posted some information about this which might help you, you can read it here

healthunlocked.com/mpnvoice...

[suellj]

Hi, has anyone here had any success in getting their category changed by calling 119? I am 64 and have had PV for 15 years, I've been on hydroxy for the last 9 years. Recently I am showing signs of transforming to MF but this can only really be confirmed with a bone marrow biopsy. I would prefer to have had at least one dose of vaccine before having a hospital procedure. My haematologist and GP say that I am category 6 as I am not more at risk of catching Covid. My 66 year old perfectly fit husband is having his vaccine today. I have argued with both my GP and haematologist about this and neither will change my category. The GP site has a message asking that people do not phone to discuss their place the vaccine queue so I'm reluctant to contact them again.

If anyone has succeeded through 119 then it might be worth me giving that a try.

Sorry for the lengthy post but it's all a bit frustrating.

Sue

[Albt4z in reply to suellj]

I had to argue my case with GP to move me from 6 to 4 despite having a letter from my haematologist!! Blood cancer UK has a letter/info sheet saying to GPs that ALL MPN patients should be in group 4 for the vaccine. Got mine 1st February.

[Mazcd Partner MPNVoice]

hi everyone, update for you, you can now download a letter to take to your GP to be added to the shielded patient list, I have just posted about it healthunlocked.com/mpnvoice...

[Davesutts]

Hi, ive got Pv (jac2+) having my jab on Wednesday. Had a tx from my local surgery earlier today.