still awaiting my referral they taking an age but I can now upload my test results
jak 2 postive: still awaiting my referral they... - MPN Voice
jak 2 postive
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djleighp
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Testt
I’m not sure how to help but can see why you’d want to be seen more urgently given your counts and the jak2 result.
I haven’t spoken to them but I wondered if it’s worth trying to call the Blood Cancer Uk nurses to see if they can offer any advice re. being seen earlier? Or can you afford a private appt? my main thought is that with hct being so high venesection might be a short term measure to reduce risk (there may be other health considerations that may be making this less favourable in your case though).
I still haven’t had my referral and it’s been two weeks can’t afford to go private again as not working I’m feeling so tired headaches itching and I’m just feel like I’m banging me head against a brick wall
also suffering from insomnia as well 4am I went to bed as just can’t sleep and my vision is suffering as in the car gir a electric one and where the speedo s normally mine has sat nav built in there and all the writing on is blurry
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