jak 2 postive: still awaiting my referral they... - MPN Voice

MPN Voice

11,287 members15,764 posts

jak 2 postive

djleighp profile image
17 Replies

still awaiting my referral they taking an age but I can now upload my test results

Written by
djleighp profile image
djleighp
To view profiles and participate in discussions please or .
17 Replies
djleighp profile image
djleighp

more to follow

Esonphills
djleighp profile image
djleighp

more to follow

Testt
djleighp profile image
djleighp in reply todjleighp

more to follow

Tesst
djleighp profile image
djleighp in reply todjleighp

more to follow

Test
djleighp profile image
djleighp

more to follow

Test
djleighp profile image
djleighp

more to follow

Done
djleighp profile image
djleighp

more to follow

Test
djleighp profile image
djleighp

more to follow

Moee
djleighp profile image
djleighp

more to follow

Test
djleighp profile image
djleighp in reply todjleighp

more to follow

Test
djleighp profile image
djleighp

more to follow

Plt
djleighp profile image
djleighp

More to follow

Hb
djleighp profile image
djleighp

more to follow

Wbc
djleighp profile image
djleighp

epo test

EPO
RoundTheWorld profile image
RoundTheWorld

I’m not sure how to help but can see why you’d want to be seen more urgently given your counts and the jak2 result.

I haven’t spoken to them but I wondered if it’s worth trying to call the Blood Cancer Uk nurses to see if they can offer any advice re. being seen earlier? Or can you afford a private appt? my main thought is that with hct being so high venesection might be a short term measure to reduce risk (there may be other health considerations that may be making this less favourable in your case though).

djleighp profile image
djleighp in reply toRoundTheWorld

I still haven’t had my referral and it’s been two weeks can’t afford to go private again as not working I’m feeling so tired headaches itching and I’m just feel like I’m banging me head against a brick wall

djleighp profile image
djleighp

also suffering from insomnia as well 4am I went to bed as just can’t sleep and my vision is suffering as in the car gir a electric one and where the speedo s normally mine has sat nav built in there and all the writing on is blurry

Not what you're looking for?

You may also like...

newly diagnosed ET jak 2+

HI this is my first post as I'm new to this forum I am newly diagnosed with ET jak 2 + 3 weeks ago...
Kazzaa profile image

ET JAK 2+ CBD patches

So after suffering from breathlessness for 3 years or more and being told by lung consultant that...
Digger031145 profile image

curcumin and ET Jak 2+

I have read many recent articles on curcumin (tumeric) saying that it has a positive effect on...
milw532 profile image

Weight gain and JAK 2 inhibitors

For those of us with positive JAK2.... I was doing some research on the web to determine a...

variation in JAK 2 platelet count

How much change from time to time (over 6-8 months ) can occur without being alarming? My...
milw532 profile image

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.