ET JAK 2+ CBD patches

[Digger031145]

So after suffering from breathlessness for 3 years or more and being told by lung consultant that it was due to putting on a bit of weight I paid privately to see a cardiologist!!!

He looked at my notes from the lung specialists and saw that they’d fine Ct scans with & without contrast and that nothing had shown up .

So he sent me for a VQ scan as he said it was the best scan to see if I had blood clots in my lungs.

I went fir the scan and the following day I got a phone call from him with the results - he said it was a matter of urgency as the scan had showed up multiple bkood clots in both lungs. He said it was urgent I started medication immediately.

he prescribed Rivaoxaban.

my question is does anyone know if I can use CBD patches along with the Rivaoxaban as I have so much pain in my upper back . Normally I’ve used ibuprofen for this but I know I can’t use it now due to the Rivaoxaban.

So has anyone else used CBD while taking an anticoagulant?

Mazcd could you ask Claire Harrison’s n for me please

[Mazcd Partner MPNVoice]

Hi 130396, I have sent you a message with the reply, which is that you need to discuss this with your own team for their advice, and that she does not see a problem. Best wishes, Maz x

[Digger031145 in reply to Mazcd]

Thanks so much.

[hunter5582]

Glad to hear that you got a proper diagnosis from your private cardiologist. Sorry to hear about the clots in your lungs. Wishing you success moving forward on your treatment.

This resource checks for interactions between drugs and supplements. It does not show an interaction between cannabidiol and rivaroxaban. reference.medscape.com/drug... .

While that is hopeful, I would not take it a definitive. This is a question that needs to be reviewed by a medical professional who is knowledgeable about drug-supplement interactions. I consult with an Integrative/Functional medicine doctor on these issues. I also always let my care team know if I am using a supplement. I have also found some pharmacists can be very helpful with questions about interactions.

I would suggest that there are other interventions for back pain depending on the cause. I also experience chronic back pain. I see a massage therapist on a regular basis. This intervention is highly effective and keeps me functional without using medications. I also practice Qigong, which also helps. Physical therapy can also help. I had to go to "back school" following an injury. It did help me be more aware of how to protect my back.

All the best moving forward.

[Digger031145 in reply to hunter5582]

I was seeing a private back massage therapist but since these clots have been found I’m now not allowed to have it anymore as too risky dislodging the clots

[hunter5582 in reply to Digger031145]

That is very unfortunate. Massage therapy really does help. Perhaps a spine specialist doc can help. I have seen one before but the truth is that the massage therapist helped more. There is some physical therapy, stretching and moving properly that has also helped in the past.

I hope you find viable solutions to the multiple issues.

[Capetranquility in reply to hunter5582]

Hunter,

I appreciate all of your input here. I can tell you spend a lot of time helping others. I am a 79 year old male and have been an ET patient for the last 3 years in Texas and just wanted to Thank You for what you do.

[hunter5582 in reply to Capetranquility]

Thank you for your kind words. I have received a lot of support on my journey from this forum. I am glad to be able to give back.

[Wyebird]

wow that’s scary, I personally wouldn’t take it until you have a check up or have sort medical advise. So glad the clots were picked up.

[Digger031145]

two mon consultants say it’s ok to use cbd patches but the cardiologist that prescribed the Rivaoxaban is saying it might thin my blood even more so advised against it.

Who do I go with? MPN experts or the cardiologist???