Myelofibrosis (JAK-2 -ve) and TIA's

Has anyone who has Myelofibrosis (JAK-2 -ve) had dealings with TIA's and how many have you had and how often. My consultant thinks I may have had a TIA. a couple of days ago after the following symptoms: Diziness, staggering, blackout (for less that a second or two) but managed to keep standing, very hot from neck up and numb-ish. Any comments welcome

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  • Hello Dave I have PV (JAK 2 +) Last February I had what I presume were 2 TIAs The first lasted 20 min with double vision and a subsequent numb jaw. The second, a few weeks later, lasted but a few seconds, but with the same symptoms. I have tried to do everything I can think of to reduce the chance of the TIAs recurring, but the local transport authorities are still reluctant to renew my public bus driving licence. I gather that the symptoms one experiences are dependant on which part of the brain the TIA happens in. Regards hackett

  • Thanks for you response, I think that as this is my first and my consultant is not unduly worried I shall just have to wait and see how it goes. At what point would I have to inform DVLA I don't know. I have been told its up to my doctor so i'lll post that question next time it happens.

  • Yes, I have post

    ET MF and have had several possible TIAs. Brain scan has revealed several ischemic areas but my symptoms have been mostly involving a weak left arm. Can be brief or lasting several hours. The first time I,too, lost balance but didn't fall. I now take aspirin and dipyridamole to reduce risk of further events.

  • Thanks for you response, I think that as this is my first and my consultant is not unduly worried I shall just have to wait and see how it goes. At what point would I have to inform DVLA I don't know. I have been told its up to my doctor so i'lll post that question next time it happens.

  • The best place to ensure that you are complying with the law in notifying the DVLA is to check the advice on the Government website. Here is a link: gov.uk/health-conditions-an... The list includes stroke and cancer. There are, I believe, different rules for PSV and HGV drivers as for ordinary car drivers.

    Hope this helps

    Doug

  • Thanks for you response, I think that as this is my first and my consultant is not unduly worried I shall just have to wait and see how it goes

  • I have ET and suffered 4 TIAs .I had one last Sunday lasted about 5 mins ,dizziness and nausea. My left arm is still weak from last years one . I fell over and lost my speech for about an hour and had weakness down left side. I m insulin diabetic though , i cant be sure its the ET or not.I dont remember much but my wife and family said it was pretty scary.. I am sure its the ET because it was about the time i was diagnosed..

  • Thanks for you response, I think that as this is my first and my consultant is not unduly worried I shall just have to wait and see how it goes

  • Dave

    The relationship is between you and the DVLA and not your consultant/doctor and the DVLA. You need to notify DVLA in accordance with their rules and they will seek the views of your medical professionals as necessary. There is also the issue of what would happen if you had another TIA and you injured someone else.

    A lot to consider.

    Doug

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