JAK2 ET diagnosis : I was diagnosed with... - MPN Voice

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JAK2 ET diagnosis

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I was diagnosed with essential thrombosis in 2019. At the time my platelet count was around 475. I was put on a low-dose baby aspirin and since then my accounts been hovering around 400. I know I’m very lucky, but I’m still having a lot of bizarre side effects: itchy burning skin that bleeds, rosacea, hot flashes... Just curious, the fact my platelet count is only 400, does it mean that I may get better? I had a bone marrow biopsy and I 100% have the JAK2 mutation. It’s all very confusing and my doctor blows me out of her office i. 10 minutes telling me I am fine because she only sees the platelet numbers and does not care about my symptoms. She is very dismissive as if I am wasting her time.

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