RSV vaccine

[Loubprv]

Hello all

I ve had PV for 16 years, and over the last two years have had bronchitis and pneumonia for 2 months and 4 months ( I have the flu vaccine every year and have had the pneumonia vaccine ) I m now on Ruxolitinib and gather my immune system is even worse than it was!!

I feel jolly peeved that those of us with compromised immune systems can’t have the RSV vaccine until we’re 75.

I know lots of incredibly fit 75 year olds actually who have never had a days illness! I’m 70.

All seems rather odd to me.

Comments please would be appreciated

Louise x

[hunter5582]

That does seem odd. Age 75 seems far too late to wait. I had my RSV vaccine when I was 68. The CDC estimates that RSV causes about 60,000-160,000 hospitalizations and 6,000-10,000 deaths annually among adults aged 65 and older in the U.S. The RSV vaccine can reduce risk of serious illness, reducing hospitalizations and mortality, particularly in more vulnerable populations.

Hope you find a way to access the RSV vaccine as you wish.

[Loubprv Volunteer in reply to hunter5582]

Thanks Hunter

[Inca]

Hi Louise,I cannot have the R S V vac as I am 8 4.!!Here in France they vaccinate all children.During the summer after two blood transfusions I was quite poorly the following week….so they tested me for R S V & other virus unknown to me Scans as well ,turned out I had Covid!!!!So I had 4 lovely weeks in 30 degrees heat outside,”resting “ in the house ,no visitors,only allowed in garden the cool of early morning.Antibiotics sorted me,tho as you know on top of Rux & my cardio meds you feel pretty awful.I will mail you Louise for a chat,💕Sally

[Loubprv Volunteer in reply to Inca]

Oh lord Sally you poor love! Hoping you might feel a bit better now. xx

[Sprat19]

I am hoping this will change in the Uk going forwards but who knows. I also know 80 year olds who are upset they can’t have it. (Age75-79 only on NHS)You can get it privately but it’s not cheap. When I did a search the cheapest I found was £230

[Loubprv Volunteer in reply to Sprat19]

Heavens…… ah well. Thanks for the reply. x

[lizzziep]

It’s all about cost to the NHS, not who needs it most. 😖

[Loubprv Volunteer]

hi - yes, isn’t it always?

[BloodyMPNS]

Hi Louise. No comment, just wanted to say hope you are feeling better and your immune system improves. Mel x

[Loubprv Volunteer]

that’s very kind! Thanks so much.

Ruxolitinib has proved transformative and I feel really well.

Not much hope of immunity improving but I can live with that. 😊😊