Update on appointments

[Jody00]

Hi allNot been on for a while has not been a good year, a was in. Hospital end of February to 3rd of March I had a very low levels of infection made me very sick shivery stomach pains I couldn't walk I had PID,so had to have my both fallopian tubes removed and my right ovaries,then said was more inflammation,then day after I came out got a phone call my mum has died by devastating brain injury, sub-Arachnoid Haemorrhage, I only had my appointment 11th July has been shortage of staff, doing OK in clopidorgel has

Platelets 665

Hb 135

Wbc 6.2

Neutrophils 3.2

My next appointment some time in October of got enough staff on

Hope all is good

[DougyW]

So sorry to hear your sad news. Stay strong

[Wewo01]

I am so sorry that you have been having such a difficult time! And then to suddenly lose your mom! Oh my goodness! My heart goes out to you. Sending you positive vibes and prayers for better days ahead. It’s so hard to get over the loss of a beloved parent. It will take time to heal from this loss.

Kim

[john0084]

Take some consolidation that your treatment is moving in the right direction , you will get seen and treated, just keep your spirits up.

[Mostew]

Glad you are back in touch with us. Thanks for your update .

I find as time goes on, after a long time of tears ,

my dear mother is still beside me.

In the form of stories I and others tell of her life. And I smile .

I hope you have support of good folk surrounding you at this difficult time

[Jody00]

Thankyou guys X

[lizzziep]

You’ve been having a really rough time. Such sad news about your mum. Thoughts and prayers are with you. 🙏🏻

[champ30]

Really sorry.... you've had a tough time. 🙏

[Bridie123]

I am so sorry to hear of all you are going through, it is a lot to deal with. I have a photo of my mum on the kitchen window cill, that I smile at and say hi. But it is early days for you. Take care of yourself.

[Jody00]

Thankyou again it is hard but am trying to stay strong too when a can , I've got my mum photo up too downstairs in living room which at moment I still can look has upsetting, has was a,shock too has was texting night before when in hospital then day after she gone, had go back up to hospital has there turn life support machine off 3 days later so I was with mum fir them 3 days has I wouldn't leave,even though I couldn't walk good has just had surgey but was the longest 3 days in my life , my mum did end up with blood clots in her legs 2 weeks before hand she got diagnosed with thrombosis on aspirin at home has I thought had something to do with blood clots but nurses said no she had a very bad brain bleed he happened so quickly but thabkyou all X

[Mazcd Partner MPNVoice]

Dear Jody00, I am so very sorry to hear this sad news about your mum, how devastating for you. I hope that you are ok. Maz x x

[Lyndjs]

Thinking of you 🌷

[Purplechoclover]

Such a difficult time for you my thoughts are with you and try and stay strong and tke each day as it comes ❤️. Huge hugs

[Jody00]

Thankyou everyone for your reply X

[Bluetop]

Oh goodness what a tough time for you. Loosing a parent is so hard but to do so suddenly and when you are not well must be difficult to cope with. I do hope you soon start to pick up with your own health.

[hunter5582]

Sorry to hear about losing your Mother. It sounds like it has been a rough time overall. Wishing a much better coming year.

[Jody00]

Thankyou X

[azaelea]

So very sorry to hear of the sad loss of your Mum on top of your own illness. Thoughts and prayers are with you. 🙏🙏❤️❤️

[Jody00]

Thankyou Xx

[william-Indo]

So sorry to your lost and hospitalized.

Keep strong and positive.

Cheers

[Jody00]

Thankyou very much x