Appointments

[Jody00]

Hi all

Hope all good,

Had my 7th covid booster all gurd, had two 4 weekly appointments platelets count in 700 now, Dr going wait first tell I've had my neurology appointment which was on 5th July but got cancelled on the day has was a strike day,my appointment is now on the 17th August,but telephone appointment with Dr on the 31st of July but we talk about starting me on Anagrelide if neurology rules out any problems and to see where Am at with symptoms platelet count at end of month , just want to ask if anyone been or is on Anagrelide? A know we all different to different treatments but just wanted to ask about Anagrelide has I don't know much about this drug ?

Thank you

Jody

[lizzziep]

I’ve been on it for quite a few years. At first I had quite a few palpitations but they settled down, no further problems.

[Amethist]

I find the website drugs.com useful to look up anything to do with medication, so you can then discuss all the pros and cons with your doctor.

drugs.com/monograph/anagrel...

[Mazcd Partner MPNVoice]

hi Jody, you can read about Anagrelide in our information booklet, you can then write down any questions you have and take them with you when you see your haematologist

mpnvoice.org.uk/wp-content/...

best wishes, Maz

[Lasbrisas1]

Cayenne Pepper is your Baby, will bring PLATELETS down ❤

[Jody00]

Thank you all thank-you maz I've look into information and I will be asking questions too with my next appointment. All the best X

[HappyGirl25]

I have been on Anagrelide for 10 months now. I started with 0.5/day and now 1.5/day. I had some side effects the first two weeks which started to subside gradually and now i almost have none, maybe some flu like symptoms or other side effects lingering from time to time. It did bring my platelets down to the upper limit of the normal range. Generally speaking it is very good and effective.

Wish you all the best