update after 5 months diagnosis of ET: I remember... - MPN Voice

MPN Voice

10,445 members14,398 posts

update after 5 months diagnosis of ET

Maxpenny profile image
9 Replies

I remember writing here as I took my first hydryea tablet early October 2023 and the fear I felt. This forum has been such a help to me. I am now on 500mg every day and yesterday my platelets were down to 342 I am so pleased. That is the last 2 blood tests that have shown a decrease and all the other figures are good. Thanks to all who gave me support as I definitely neeed it.🤣🤣🤣

Written by
Maxpenny profile image
Maxpenny
To view profiles and participate in discussions please or .
Read more about...
9 Replies
Spanelmad profile image
Spanelmad

Glad to hear the platelets are down for you too.I remember you posting as you started treatment in the October like me.It's positive that the forum has kept me sane when you want to spiral because you've been googling.

Keep posting as your results.

KLCTJC profile image
KLCTJC

yeah!!!! So happy for you!!!

hunter5582 profile image
hunter5582

Glad to hear that you are doing well. Wishing you continued success on this journey,

twirl63 profile image
twirl63

🤗🤗🤗🤗

Piipero profile image
Piipero

Glad to hear that Hydrea is working well with you.🙂

Janis12 profile image
Janis12

Onwards and upwards....great news, time to stop worrying and get on with life. Best wishes.

Threelions profile image
Threelions

Nice one👍

Thanks for the update & pleased things are going ok.

Tipsy2023 profile image
Tipsy2023

That is such a lovely post so I just wanted to reply . Keep going

my platelets are fingers crossed still well controlled trying to get doc to reduce Hydroxycarbamide a little more to help with fatigue.L

Maxpenny profile image
Maxpenny in reply to Tipsy2023

Thanks yes I find the fatigue a problem some days but just good to know so far medication working 🤣🤣

You may also like...

Food after ET diagnosis.

anything we can eat instead of the fat & saturates in all on the supermarket shelves. Even vegan...

Potential ET diagnosis

HI All, I’ve been on this forum a few months now but this is my first post. After a routine blood...

Understanding a MAYBE ET diagnosis

inconclusive. I just did another blood count and my platelets were in the normal range! but...

Possibly facing ET diagnosis

today I likely have ET due to mildly elevated platelets for 10 years. Shocking with a young...

From ET diagnosis to uncertainty !

(so I thought) diagnosed with ET June 2015. My platelets are not very high, over the last 2 years...