update after 5 months diagnosis of ET: I remember... - MPN Voice

MPN Voice

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update after 5 months diagnosis of ET

Maxpenny profile image
9 Replies

I remember writing here as I took my first hydryea tablet early October 2023 and the fear I felt. This forum has been such a help to me. I am now on 500mg every day and yesterday my platelets were down to 342 I am so pleased. That is the last 2 blood tests that have shown a decrease and all the other figures are good. Thanks to all who gave me support as I definitely neeed it.🤣🤣🤣

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Maxpenny profile image
Maxpenny
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9 Replies
Spanelmad profile image
Spanelmad

Glad to hear the platelets are down for you too.I remember you posting as you started treatment in the October like me.It's positive that the forum has kept me sane when you want to spiral because you've been googling.

Keep posting as your results.

KLCTJC profile image
KLCTJC

yeah!!!! So happy for you!!!

hunter5582 profile image
hunter5582

Glad to hear that you are doing well. Wishing you continued success on this journey,

twirl63 profile image
twirl63

🤗🤗🤗🤗

Piipero profile image
Piipero

Glad to hear that Hydrea is working well with you.🙂

Janis12 profile image
Janis12

Onwards and upwards....great news, time to stop worrying and get on with life. Best wishes.

Threelions profile image
Threelions

Nice one👍

Thanks for the update & pleased things are going ok.

Tipsy2023 profile image
Tipsy2023

That is such a lovely post so I just wanted to reply . Keep going

my platelets are fingers crossed still well controlled trying to get doc to reduce Hydroxycarbamide a little more to help with fatigue.L

Maxpenny profile image
Maxpenny in reply toTipsy2023

Thanks yes I find the fatigue a problem some days but just good to know so far medication working 🤣🤣

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