Can anyone shed any light on my situation please? I was (so I thought) diagnosed with ET June 2015. My platelets are not very high, over the last 2 years ranging from about 437 to 460,My nurse said high in my clinic is 400 and over, I tested positive for jak 2 albeit apparently very low just detectable. My white count is usually a bit high and my neutrophils too. I've been experiencing night sweats for the last 6 months or so, possibly my age (51) periods still regular as clockwork. I get very fatigued and have been experiencing dizzy spells, burning pain in my fingers and toes.Deep pain in my thighs, I do also have fibromyalgia. Recently I went to see Adam mead at the churchill hospital , he said he's not convinced I have an MPN or I could be right at the beginning of the diagnosis. He told me there are members of the population with similar platelets and low jak 2 positive like me that have nothing wrong with them? It's left me feeling pretty confused to be honest, I didn't know you could have a positive jak2 and have nothing wrong with you? Secondary thrombocytosis was ruled out at the beginning of my diagnosis I thought I had. He said he didn't know why a diagnosis would cause me worry as we have a normal life span, I didn't really know what to say to that, he also told me dizziness is not really a recognised symptom of an MPN? I have read everywhere that it is? I don't really doubt him but he's very much confused me! He is seeing me again in April and I almost feel like I don't want to go, he sent me for a scan today and the Dr said my spleen looked normal thankfully. I probably sound like a right moaner, I know my counts are pretty good but I don't like suddenly being in a limbo like state not knowing what's going on.